Just having one of those weeks. long vent.

ToastieSimons · March 2011

DS will NOT sleep. Literally, the other night he was up screaming from 11-4. Thursday night he finally slept and last night was back to a no go. I have no idea whats bugging him. I've also just finally gotten him to take a spoon again (not well, but he'll open his mouth halfway half the time). And then today, nothing.

I'm sick of being told he's teething. He's 9.5 months and has no teeth. If he's "teething" then he should have an entire mouthful now. There is no bump, no white mark, nothing in his gums, top or bottom. He had a mild ear infection and it's gone now.

I don't know if he doesn't want to eat because of getting medication in a syringe in his mouth twice a day, or if it's a developmental phase where he wants to feed himself but physically can't.

I really feel our OT isn't giving us the support we/he needs. They're so obsessed with getting him to hold and chew a biter biscuit, which he does, just not for them. I've even taken a video. Yet I tell them that he won't even open his mouth for a spoon and he says "Oh."

For such a long time I feel like PT/OT were in the point of "Well lets wait and see what happens" and PT finally has gotten on board with actually doing something. He still can't sit up independently and all they say is "Well maybe he'll figure it out soon". He's hypertonic and pretty much they just ask me if I'm still doing his stretches and I tell them yes.

Then the coordinator tells me "he's never this happy" and he "never makes this much noise" "this is such an improvement". I had to argue with her that he always is, it just seems he knows which days therapy are and he wakes up early those days so that naptime falls right before therapy so when i keep him up he melts down.

We go to dinner the other night, and after the 4th person asking if we wanted a high chair we finally got settled in. DH was in the bathroom and DS was just sitting on my lap and the lady next to us turns and says "How old is he? 5 months". I tell her 9.5 months and she makes this face. And I said he has some motor skill issues just to explain why I wan't letting him sit on his own. And she gets all in a huff that "Well then it's not my fault I guessed wrong!".

I'm sick of being talked down to for refusing a high chair in a restaurant. I told DH that if our waitress made one more comment I was going to tell the manager. Even after we told her no, she went and got it anyways and so we said"I'm sorry we really don't need one". So she comes and takes our drink order and says "You know we DO clean them your kids not going to get dirty."

Ugh. Add this to the 3 hours of sleep we've gotten all week and I'm just an emotional wreck. I went to bed at 7:30 last night and DH did night duty and I seriously slept until 7 today.

Thanks for letting me vent.

meldoo2002 · March 2011

(((hugs))) that does sound like one of those weeks, but you know what... I would call and talk to that manager. Your waitress whether she knew the situation or not was being rude. You said no thank you nicely... she was out of line.

hopanka · March 2011

Ugh. That is terrible, I'm really sorry. Sometimes in these situations one should be able to put all polite manners aside and be really blunt with people like that. I wish I could be there and embarass them for you with something like: "I'm not sure if you realize this, but your comment is very rude (or your comments are very hurtful and judgmental). This is really something a mother of a special needs child needs to hear from a stranger. Thanks - NOT!"

Seems like your therapists need a swift kick in the butt, too. Waiting-out approach? Nice - is that why they're being paid big bucks for their expertise? Because if that's the case....you can do that for them...ugh. I'm sorry, that doesn't seem like a whole lof of support for you either.

Hopefully next week will be better for you guys....along with more sleep!

luckyfrgg · March 2011

Ugh. Sorry you're having one of those weeks. They do suck. *hug*

DD1 had a lot of rough nights where we couldn't figure out why she was so upset, so I'm going to throw out some of the ideas we had - if you've already tried them then please ignore me, I'm just hoping maybe one of these will help you get some rest! Sleep deprivation is NO joke.

- First, what finally helped. We figured out she had silent reflux, put her on a low dose of Zantac, and at 15 months she slept completely through the night for the very first time. And then for the next 7 nights in a row. It was a miracle. Our pedi had been telling me I was just breastfeeding her in the middle of the night when she woke up and that was why she kept waking. Turns out it's good that I was doing that because breastmilk helps to soothe stomach acid (it's slightly basic) so I was basically giving her a tums. Anyway, might be worth trying some reflux meds and see if that helps.

- Some kids I know have a tough time with fabrics. If your DS has any sensory issues at all, it'd be worth trying a super, super-soft crib sheet. We bought the American Baby Company's Heavenly crib sheet (they have it on babyearth.com) and DD loved it. Turns out that wasn't the issue, but she did love laying in her crib and feeling the soft velour of the sheet.

- Room temperature. We still have a tough time with this one. DD is pretty sensitive to over-heating, so if the room gets too hot she starts having night terrors and we're in for a long night. We put her to bed in a room with the fan going, usually in a thin sleeper with no feet on it (and no socks), and she kicks her blanket off and sleeps just fine.

- Leg cramps. I'm thinking of this one just because you're having feeding issues so it's easy to get the vitamin balance a little off. If your DS's iron or potassium levels are getting low, it can cause pretty bad leg cramps. Maybe as your doc about supplements of some kind? I also made a point to massage DD's legs before bedtime - we did post-bath lotion and while I rubbed it into her legs I really used quite a bit of pressure. Side benefit of helping her relax.

Good luck, and sorry it's been such a crappy week. Ignore the waitress and the lady at the other table, unpleasant people don't deserve the time we waste thinking about them. Hang in there!

Want a personalized experience?

Just having one of those weeks. long vent.

Re: Just having one of those weeks. long vent.

Choose Another Board

Search Boards