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ok sp ed teachers, need more help!
Hi ladies! My nephew, who I've posted about before, went thru testing with CHDD at UW. He has been given a diagnosis of dyslexia. They also found out Dad has adult ADHD and probably also the younger brother.
So... nephew is 10 (4th grade) and reading at kindergarten level. He is starting to have trouble in math now too. They have a good sp. ed teacher, but she has told them she is not sure how to help him. They are looking at enrolling him at a private school in Seattle for a while, but it is very $$$ and they are "low income." Mom would really like for him to have a tutor, or at the very least talk with someone who REALLY knows dyslexia so she can get her questions answered and they can start figuring out how to help him with school work. They are concerned that he will just keep falling farther behind. Also, the sp ed dept at his school are telling her that the school has to get "permission" from the state to bring in more materials to help him and that they have to "make a case" in order to get these things. Why oh why cant they just help the poor kid??? But they dont know specifically what to do for him anyway.
My question is.... anyone know of good specific dyslexia resources I could point them to? Tutors with specific dyslexia experience, any way to get scholarships etc for extra help or private school, someone she could talk to/ ask specific questions? Thanks in advance for any suggestions!!!
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Re: ok sp ed teachers, need more help!
Does he have an IEP? If not, the parents and school need to develop one so that he can get the funding and care that he needs. Here is further information. I am not a Special Education teacher, but I have worked with kids who have IEPs, and this is a very important document needed for the proper education of kids with disabilities/learning and physical. This is probably the first action that needs to be taken.
BethS would know a whole lot more than I do! GL!
The only Easter Bunny I can get behind.
Maxwell Joseph 4/09 Lucy Violet 10/12
Jeez, that school is bad. I don't have any resources for dyslexia, but I have a resource for a parent advocacy group that is free of charge. It sounds like they're going to have to get pushy with the school & the district to get his needs met, which is really unfortunate, but sometimes the way it has to go. This group will be able to coach & support the family on what their rights are and how to get their child's needs met by the school.
https://www.wapave.org/ptp/about.asp
Did the people at CHDD give them any resources for dyslexia?? It might be worth a call to the team who saw him, explaining the situation they're in (not being able to get the help they need from the school, etc.), that they don't have a lot of resources to hire their own tutors, etc., and seeing if the people at CHDD have any recommendations about resources - clinics, programs for trainees that they could access at a reduced rate, or even research studies. The CHDD is a UW-affiliated training facility, so they should have access to that type of info if there are appropriate resources out there.
Thank ladies!
K- yes he has had an IEP for a while, but they keep saying they have tried everything, etc and dont know what to do to help him. He does speech 30 mins a week and there is a sp. ed teacher that works with him, but it seems like they just dont have anyone with experience with his disability.
J- that would be great, thank you!
FF- that's what I suggested too, so I will send them your links! Thanks!
Is it Hamlin Robinson? They can offer pretty big scholarships and really try to help families make their tuition costs work out. That school does AMAZING things for kids. They also have a good summer program (they call it a camp) to help children make more gains, especially kids like your nephew who are getting help at a little older age.
I might have already said this the last time you posted, but Cindy Dupuy would be a great resource. She is a dyslexia/LD specialist who herself is dyslexic. The Language & Learning Clinic is also great, and I believe they might be covered by some forms of medical insurance as well. I might also be able to put you in touch with a friend who might be able to tutor him, and if she can't, she could at least offer some advice and support. Send me a PM or FB message if you'd like her number so I don't forget.
I forgot my phone at work today.
OK. I'm back. The mom of one of my students is an expert in this subject! She is dyslexic herself and has done a TON of research, learning, curriculum development, legislation, etc. She teaches teachers and has a private practice where she tutors kids. Her name is Laura and her email address (listed on her website, so I feel OK giving it out here) is roganl AT comcast.net
I bet she would have either a)some good ideas of what the family should tell the school to do, or b)some resources for your nephew's family to utilize.
yes it is! That;s great to hear, b/c she has been talking about this school for three years now but they dont know how they will afford it.
Thank you ladies!!!!