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Quick update: diagnosis

lite-brightlite-bright member
in Special Needs

Autism. 

I thought I was going to be okay with that, but it's still hard that this is now our reality. The good news is that her cognitive skills are fine, and she isn't showing a lot of the rigidity and/or behavior problems that often come along with ASD -- but the fact that she has both social and speech deficits, and her repetitive speech and behavior, puts her beyond Asperger's or PDD-NOS. They also confirmed the need for some OT for fine motor.

We'll be starting to look for an ABA therapist on our own, and our IEP meeting with the district next week will help define what services we'll be able to get this spring and summer, before starting preschool in the fall. 

I toured the co-taught classroom yesterday and really liked it. All services are received in-classroom, during their "center time" when they do various types of play -- I was able to watch some of the interactions with a little girl and one of the speech pathologists, even. I think once I've processed this a little more, I'll start getting excited about that again, but right now DH took DD1 to the airport to pick up my dad for a visit, it's DD2's birthday, and I'm trying to keep it together while this sinks in. 

image

DD1, 1/5/2008 ~~~ DD2, 3/17/2010
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Re: Quick update: diagnosis

  • skittles_123skittles_123 member

    Good luck with everything. It is really hard at the beggining, but it sounds like you are taking the right steps. Try to enjoy you dd2's b-day. Life still goes on, just in a different way. Both my ds and my dd b-days were within a month of ds initial dx, it was rough. It is okay to cry and grieve. Don't be too hard on yourself.

    (((hugs))) and prayers 

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  • SobachkaSobachka

    This is very hard. I remember how I fought to be heard re: my son's issues, and when he was finally diagnosed and it hit me that I was right, I was devastated.

    But life does go on. You will put programs in place for your DD, and you will work on her skills, and after a while, it will become your routine, your life.

    Good luck to you and hugs!

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  • Florak8Florak8

    Hugs and prayers to you.

     

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  • lite-brightlite-bright member

    Thanks for the kind words, everyone. :) I'm feeling better today. 

    Auntie, preschool would be starting in the fall. They offered us the option of starting her ASAP, but recommended against it -- she's a very young three, it's a class of mostly fours and even fives, and they've been together since August. In touring the classroom, the teachers made it clear that they start the year with a lot more visual prompts, scaffolding, etc. than they have now after a whole school year of building up skills. Given that, I agree that she'll be better off starting in the fall as planned where she won't be the youngest by far, the only new kid, and the only one trying to figure out how to navigate new waters without some of the supports that would usually be there. 

    They have a pre-preschool program run by their SpEd folks, with speech, etc. that we'll start in mid-April. A new group of kids around the same age is going to be starting up after spring break, so it's a different situation than the preschool classroom. 

    I won't find out more about their summer program until our IEP meeting next week, but if it's at all appropriate, I'm going to be pushing hard for her to participate in that.  

    image

    DD1, 1/5/2008 ~~~ DD2, 3/17/2010
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