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Can I borrow a crystal ball?

PDXPDX
in Special Needs
DS has another cardio appt this Friday. We've been waiting for nearly two years to hear when his third open heart surgery will be and I know it's best to put it off as long as possible but the ongoing stress is killing me. I don't want to hear 'come back in another month and we'll see how he's progressing' but I also don't want to hear that it's time for the surgery. This is going to be a very long week and I'd like to just run away with my family to mexico or something. Or a few hours of uninterrupted sleep without stress dreams would probably help too! 
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Re: Can I borrow a crystal ball?

  • Mrs.RoseMrs.Rose member

    You can borrow mine!  Of, course, it has never worked . . .

     

    Good luck at the appointment.  I hope whatever outcome you get will relieve some stress. 

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    Carson Henry, born 39w, 2d, via emergency c/s due to no fetal movement and fetal distress.  Seizures, IVH grade 2, brain injury, kidney and liver damage.  Complete blood clot in the artery in his right arm.  27 days in the NICU.  Now discharged from all specialists, excepts his kidney doctor, who will monitor him indefinitely.  My tough little cookie.

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  • mskolmanmskolman member
    Oh, we can relate! We are always waiting for the second shoe to drop at our pediatric cardiologist appointments. We think our DS will need his next surgery between the ages of 3-5, but we just never know. It is so scary to think about another surgery for him. He was an infant when he had his first. I think it will be so hard to let him go now that he is older and has been part of our family at home for so long. Just know you are not alone...but I don't have any advice for you. :(
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  • PDXPDX
    thanks to both of you :)
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