Special Needs

Seriously need to work on communication

She (Peyton) just cried, for over 2 hours.  Straight.  Snotty, falling down, turning red & sweating freaking crying.  

She is teething but she had motrin & then tylenol and oragel & a cold waffle.   I let her get in Morgan's swing (she loves to swing).

NOTHING.

I was on the verge of breaking down and crying myself.

Morgan is sick, so i've got one whose hardly eating enough to stay alive bc she's lethargic and one whose screaming enough to wake the dead.

THEN.  THEN

The kicker, she grabs her shoes, grabs my hand and goes over to the door screaming.

SHE WANTS TO GO OUTSIDE.

dies. 

DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


Re: Seriously need to work on communication

  • I'd suggest trying sign language.  We've had a lot of success with Signing Time DVDs.  Zach actually signs to ask for them.  Our EI Parent Office has them available for lending; we ordered them both from the website and from Amazon.
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