Low muscle tone question

Re: Low muscle tone question

• runnergirl2008 member

  March 2011

  DS's isn't severe but even at 5 or 6 months he would have a hard time holding his head up when he was upright for more than a few minutes. Now at 2 years old you can hardly tell except when he's tired (he gets like a wet noodle). About 6 months we started to see his endurance increase. With time and therapy it can improve.
  

  

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• elli2010

  March 2011

  DS2 was diagnosed with low tone around 7 months of age. He was behind in sitting at that point. He is now 10 months and with 3 months of OT he is crawling He'll be a late walker. He struggled with holding his head up at a young age, but rolled on time.
  

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• Florak8

  March 2011

  DS sat independently around 14 months. He now rolls to get to toys, and we are working on arm and shoulder strength for crawling. We also use a stander to get him used to weight bearing in his legs, and hip helpers shorts, and solid ankle foot orthotics.

  Hypotonia is kind of mysterious. We still don't have a DX. It is hard to accept some times, but you get kind of used to it. Even in groups for people with hypotonia, there are lots of different DX and even more people who never get a DX.

  Hang in there. At first I felt the need to rack my brain 24-7 trying to find some sort of explanation or DX. It did not do anyone any good. 

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• Calypso312

  March 2011

  DD has only recently started to show signs of increasing tone, however little that may be. She has excellent head control, but she still isn't sitting and can't push up if she's on her tummy. She's only been rolling over for a couple weeks.

  I prayed for this child, and the LORD has granted me what I asked of him. 1Samuel 1:27

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• makinglemonade

  March 2011

  I'll never forget my DDs first drs appt. after she left the NICU at 2 months.  He put her on her belly and she lifted her head straight up to look at her dad!  It was a miracle, she'd never done that before.  Neck control took awhile, maybe 2 months as well.  She sat up without help at about 7 months.  She walked at 13 months.  So don't give up hope, even low tone babies can catch up!  She's 2 1/2 now and only has issues with stairs (but that's mostly due to her size, she can't reach the next step well because she really has to lift her feet).
  

  The "wait and see" NICU thing stinks.  I'm sorry.   I told them just to tell me worst case scenario each time so I could be pleasantly surprised.  That seemed to work better for me!
  

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• Falioley member

  March 2011

  Dean's muscle tone is still low and honestly hasn't improved much. But he's gotten SO much stronger. Things started changing once he could hold up his head at 8 months and then again at 14 months when he started crawling. TheraTogs really help him kind of "hold himself together," and we have also used Hip Helpers with some success because he was SO frog-legged. We have a dx, so it's a little different, but low tone has definitely been one of Dean's biggest issues. 

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