Special Needs

Severe refluxers: PH Study anyone?

If you have had this done, what was it like? Also, what were the indications to actually have the test done? Did your child have reflux only, or other issues? What was done with the results?

We are looking at this as a possibility, and I am just beginning to research. 

Re: Severe refluxers: PH Study anyone?

  • My DS had one.  It wasn't terrible.  They drop a probe similarly to an ng tube.  It measures the acid level.  You document everything (feedings, spit-ups, hiccups, etc).  They then look at the readings compared your notes.  We did it when DS's feeding issues and stomach issues intensified.  DS showed that he had a fairly high acid level on a consistent basis.  We had ours done outpatient. 

     My niece had two done.  Once while admitted and once outpatient as well.

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  • Thanks for answering what did they do with the results?
  • Hi, my daughter had this done when she was in the NICU.  She was very young, and already hooked up to lots of tubes and wires so it sort of fit right in.  They were able to tell that yes, she had severe reflux and that it should be controllable by medication.  I'm not sure what the point of it was because we kind of already knew that... except medication only helped a little at that point.  I think they put her on Prilosec after the results were in.

     Your question is a good one-- what will they do with the results?  If it's different than the diagnosis they have now then it may be worth it, but if they don't have a clear course of action then it might not be worth it.  

    Sorry I'm not more helpful...

  • If the reflux is severe enough, your doctor may consider a surgery called a nissan fundolplication. It's where they wrap the esophagus to prevent acid from coming back up. If not, they will probably use medications to treat.
  • Sorry, I haven't checked in a few days.  For my niece, it helped solidify the need for a fundo (surgery pp mentioned).  For my DS, it was used to determine that his reflux was severe enough to warrant the meds he was on.  We also had an endoscopy done at the same time to rule out other issues.  Basically to confirm his issues were just reflux.  He was later dx with MFPI.
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