Community› The Bump Local Boards› Cincinnati Babies
Cincinnati Babies
New Discussion

F/U to Children's NICU

JoJoGeeJoJoGee member
in Cincinnati Babies

Lily was finally transferred on Tuesday.  She was scoped by the ENT's on Wednesday.  They found some granulation in Lily's airway which they easily removed.  They inserted a smaller ET tube and are giving her a topical anti-inflamatory.  The ENTs said that everything else about her airway looked good, (yay!).  They are going to take her off the ventilator middle of next week - and allow her some time to recover from the granulation extraction.  An ENT will supervise the next time she is taken off the ventilator to see if her vocal cords are working correctly - If they aren't moving they could be adding to her airway obstruction and we may be looking at a trache.  But, it could just be that the granulation was the cause of her breathing difficulty.  If that is the case then she has a very good chance of being taken off the vent successfully.

I was really nervous about her transfer, but overall I think it has been good for her.  Children's isn't as stringent about parent's washing their hands as Miami Valley was, and it sucks that she has to be in a pod style room - open to many forms of stimulation.  But, Children's is being aggressive with her treatment and she has made good progress while she has been there.  Some other improvements that have been made since she's been there - They have risen the top of her isollete; she hasn't dropped her heartbeat once (this will probably change when they take her off the vent); and she hasn't needed any extra oxygen in the past couple of days. They are also thinking about going straight to nasal annuals and skip cpap when they take her off the ventilator next.

Thank you all for your kind words and reassurance.  Overall, Children's has been great and I am very happy that we transferred.  I will make sure to keep all of you updated and may email those of you who provided your email addresses.  Cross your fingers that she is successful the next time she is taken off the ventilator!

           image      image      image
image
Report Reply to Post

Re: F/U to Children's NICU

  • KYmama9286KYmama9286 member
    I'm glad to hear that she is doing so well! That would be a huge accomplishment if she can skip the cpap and go straight to the nasal cannulas! She will be in my T&P this week as will you-- keep us updated! :-)
    Image and video hosting by TinyPic Lilypie Third Birthday tickers Lilypie Second Birthday tickers Lilypie Pregnancy tickers
    Report Reply
  • Loading the player...
  • IAM4UKIAM4UK
    Hang in there. The NICU is a  roller coaster ride that isn't fun. If you haven't already, check out the preemie board on here. I lived on that board when we were in the NICU.
    image
    Baby Birthday Ticker TickerBaby Birthday Ticker Ticker
    Katie: 1/16/08 2lbs. 15oz.
    Abby & Emily: 12/31/10 6lbs. 2oz. & 5lbs. 7oz.
    Report Reply
  • HrH33RNHrH33RN
    I cannot imagine the emotions you must be going through. However, Childrens is a great hospital, and I hope you find comfort in knowing she is great, highly experienced hands. Please continue to update us! Sounds like she is making great progress, Keep it up Lily! Prayers are with your family.
    Warning No formatter is installed for the format bbhtml
    Report Reply
  • hav2runhav2run
    Wishing you and little Lily well.  I think things look encouraging.  I hope the weaning from the vent goes smoothly, and you have her in your arms sans tubes very soon!
    Image and video hosting by TinyPic

    Lilypie Fourth Birthday tickers
    Report Reply
This discussion has been closed.
Choose Another Board
Search Boards
"
"