I think I'm losing my positive attitude. I'm sick of this place. I've worked so hard to establish a routine with DS and it's just being shot all to hell. The nurses won't let him sleep longer than 3 hours because they want him to eat. Fine... I can understand that, but DS is CRABBY because he's used to sleeping 4 or 5 hours at a time. Especially for his morning nap. I asked if we could wait on just this one feeding and let him have his full nap, but they won't. I'm losing my patience. Last night I almost just told everyone to get out of the room, discharge my son, and that I was done being here. Let the kid freaking sleep. He eats just fine, actual eating is not the issue here. *sigh*
Re: Finding it hard not to get mad at the staff.
I'm so sorry. Not sure what you're going through with DS but it's frustrating when the nurses won't listen.
Good luck!
Speak up girl! You know him better than anyone, so speak your mind and MAKE the staff listen to you.
Good luck!
I don't have any advice, just sympathy and ((hugs)). I know it must be frustrating, keep asking them to let him sleep, if there's no medical reason why he needs to eat every three hours, then I say put your foot down and don't let them wake him.
BTW - When I say prayers with DS everynight, we pray for Josiah to get better and strength for him mommy
Thank you so much. That just brought tears to my eyes. This is by far the longest stay we've had in the hospital. I think I'm just really losing my patience. I want to go home and sleep in my own bed. I want to know what's wrong with my son, and I want it to be fixed. I'm apparently throwing my own pity party today.
I am so sorry. Hang in there a little more.
You're doing the best thing you can for your child. He's so lucky to have a mom who's so loving and supportive and wants to make sure that he's comfortable.
Hugs.