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And now the rollercoaster is going downhill...

JakesBride07JakesBride07
in Preemies

I keep telling myself "This is normal, it will come back up again."

Blake (our rockstar who's been the show off of the NICU) had to be re-intubated last night after probably a good 5 days on CPAP. And his bloodwork is boarderline for infection. They ran cultures and a spinal tap, I just can't imagine my little tiny boy having a spinal tap. They stopped his feedings too. Not to mention the got grreen aspirations from his tummy before one of his feeds yesterday.

Addison is now going thru withdraws from the sedative they had her on and they decided to give her a small dose of the sedative to hopefully take the edge off. She had the same nurse yesterday that I thought I was pretty clear about not wanting with her again and of course she spent the whole day going in and out of her incubator rather then cluster care, especially on a baby who does not like to be bothered. I feel like I dont get to visit with Addison nearly as much when said nurse is on duty because between her and the nurse she is training there is no room for me when they are fooling with her.

I feel so defeted and I am trying so hard to be strong. I am pumping now and then plan on going to the NICU in time for rounds today and see what they have to say.

TTC #1 since 4/2007... MFI (low motility/low Testosterone) & PCOS IVF #1 August 2010...BFP 1st sono shows TWINS!!!! Due May 23rd 2011 Ruptured @ 21 weeks (Jan 13) Delivered 26 weekers (Blake and Addison) on Valentine's Day... Keeping faith and praying, God has a plan and we just have to learn to follow. Our Blog ... ourvalentinesdaysurprise.blogspot.com Lilypie Premature Baby tickers
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Re: And now the rollercoaster is going downhill...

  • ruthiewithruthiewith
    I'm so sorry that you're going through all of this.  My DS had a spinal tap last weekend because he contracted a staph infection - it's gut wrenching thinking of your child going through this procedure.  He made it through just fine.  I know at my hospital they do so many of these procedures that it's routine for the docs, but not any less anxiety producing for parents. I hope you get some good news today, my T&P are with you. 
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  • ESM354ESM354
    So sorry to hear.  Hang in there- the nicu is tough!  Listening to rounds always helped me because the Dr.s did a great job of answering questions for me and I felt better knowing what their thought were about what was happening.  I would see if there is someone else you can talk to about your wishes to have a different nurse.  We had a nurse manager that would come talk to us sometimes about how things were going.  The social workers were amazing at helping with things like that for us too.  Also, our nicu had primary nurses and when we found on we liked a lot we asked that nurse if they would be our sons primary so then he had her almost every time she was working.  This was great for me because then every day I didn't have to start over again learning a new nurse.  Good luck!!
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  • shanlubeyshanlubey

    I'm sorry with everything you are going through and feeling. Just because I've been there... Samuel was intubated after a septic workup found an infection in his PICC line a few weeks ago. He was reintubated as a precaution, so he didn't work so hard. He is back on CPAP now. He also had the green aspirate, but that's cause it's hard for those little bellies to move out all that sticky meconium. He will get through it! Before being reintubated, he was on room air and low CPAP settings.. so really, anything can change in the blink of an eye.

    At first, Samuel had NO breathing issues. He was a rockstar too. But as the honeymoon wore off, he got tired. He's had to teach himself to breathe again. 


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  • CLAYLIOVERCLAYLIOVER
    I am so sorry you are going through this. I will keep praying for those sweet babies! Abigail had so many infection scares I can't even count them but it always turned out okay.
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  • fairyjillfairyjill
    Ugg been there.  I am so sorry you are going through this.  Just so you know spinal taps are the norm in the NICU as soon as there is any sign of infection that is what they do.  My daughters both had a few.  It is awful to imagine but they honestly do not remember at all and there skin and tissue is all still so thin so itmay not be as painful to them.  The reintubation is probably as the person above said, to make sure she is not working to hard to breath, so her body can work to fight the infection.  My Josephine could not tollerate feeds for the first 30 days, she always had the green stuff :(  Her little body worked it self out though and she was and is wonderful.  I would also speak to the nursing supervisor and tell her your feelings on the nurse.  I had to do that 2 times and they do listen to you.  They are caring for the baby but you are still the parent and your feelings are key.  Hang in there.  Your coaster will be going up again soon!
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  • Cara03Cara03 member
    HUGS!!!  So sorry for all you are going through. We are praying for you and your babies every day and hoping you get something positive to cling to today.
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  • Kate621Kate621 member
    The NICU is hell. I wish that there was something I could say to make it easier, but I know there isn't. Just know that you and your family are in my t&ps. You are doing an amazing job. ((hugs))
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  • sail123sail123 member

    I'm sorry you've had tough news. The down rollercoaster days are so so hard.

    I'm thinking about you and your babies. 

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  • jtenebackjteneback member
    I'm so sorry things are going as well as they could. Hang in there, mama!
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  • Crystal318Crystal318 member
    imageJakesBride07:

    I keep telling myself "This is normal, it will come back up again."

    Blake (our rockstar who's been the show off of the NICU) had to be re-intubated last night after probably a good 5 days on CPAP. And his bloodwork is boarderline for infection. They ran cultures and a spinal tap, I just can't imagine my little tiny boy having a spinal tap. They stopped his feedings too. Not to mention the got grreen aspirations from his tummy before one of his feeds yesterday.

    Addison is now going thru withdraws from the sedative they had her on and they decided to give her a small dose of the sedative to hopefully take the edge off. She had the same nurse yesterday that I thought I was pretty clear about not wanting with her again and of course she spent the whole day going in and out of her incubator rather then cluster care, especially on a baby who does not like to be bothered. I feel like I dont get to visit with Addison nearly as much when said nurse is on duty because between her and the nurse she is training there is no room for me when they are fooling with her.

    I feel so defeted and I am trying so hard to be strong. I am pumping now and then plan on going to the NICU in time for rounds today and see what they have to say.

     

    I am sorry to hear that you are not going through a good time right now.

    Do they by any chance have your LO on a multivitamin through the feeding tube? This happend to my LO. I walked into the NICU and they said "He has some type of green residual" - It wasnt until the next day we figured out it was the vitamins. the nurse was an idiot!

    Good Luck! Keep your head up!

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  • Million$$BabyMillion$$Baby

    I'm so sorry that all this is happening. I can tell you that my LOs were on and off the vent several times before moving to CPAP for good. They'd go on CPAP, then tire out after a few days and need to be reintubated. Frustrating and upsetting, I know.

    As for the nurse taking care of Addison, I would immediately go to the charge nurse and remind her that you do NOT want her taking care of your baby. You are uncomfortable with her, then you shouldn't have to have her as your nurse.

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  • Million$$BabyMillion$$Baby
    Oh - and I just sent you a PM!
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