High-Risk Pregnancy

Marfan's Syndrome

looking for advice from other mommies-to-be with Marfan's Syndrome

Re: Marfan's Syndrome

  • I suspect I have Marfan's, but haven't had it confirmed. I have scoliosis and MVP. I'm very tall and lanky, and my arm span is longer than my height. I can do the weird thumb thing too.

    I didn't have any problems with my heart during pregnancy, but I did end up on this board due to other things (IC and pre-E).

    I'm not sure I'm qualified, but if you have any questions feel free to ask.

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  • I have been diagnosed with a Marfan like syndrome. They call it Marfan like because my symptoms are not as severe as a true Marfan patient.  I did have heart surgery because of it. The connective tissue in my aortic root was dialated too much. The surgery went well. I am now 9 weeks prego. This is my first. I take Lovenox everyday to help prevent blood clots. Just wanted to reach out to you. It's nice to know there are others.

     

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