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duarte galactosemia??

Our doctor called us the other day and said our little bean has this. We are going to see some specialists on Monday, but was wondering if any of you ladies have a baby with it, what your experience has been, and just if you have any advice. Thanks

Re: duarte galactosemia??

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    From my understanding, you just need to alter their diet a bit. Restricting lactose/galactose for the first year, then slowly introducing it. (My DD doesn't have this, but is extremely sensitive to lactose).  Good luck!

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