Success after IF

~*~ Davez ~*~

OMG - you're so right. She's had the hardest time settling down with the brace off. I was thinking it was because she wasn't used to it, since she's been in the brace for 6 weeks, but I wasn't sure.

She even startled at first when we would touch her back (we couldn't before since the brace took up so much room). 

I hope she adjusts quickly. I feel so badly for her right now.

Dx: MFI, DOR, 9 Fibroids and homozygous MTHFR

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Re: ~*~ Davez ~*~

  • I vividly remember tossing and turning in bed, feeling every wrinkle, my back felt like butter and I could not settle in for the life of me. For quite some time, actually. Like it takes time to get used to being IN a brace, as does it take time to get used to being OUT of one.

    And forgive me for dishing out some words of tough love here, my mom got this when I was diagnosed with scoli, and she just about punched the bich who said it to her.  Your child is hurting, she's having some serious issues you wish she didn't have, and it's really not fair a tiny baby has to deal with this.

    That being said.... NO PITY PARTIES. I am a firm believer that she can feel that. She'll pick up on you feeling "sorry" for her, however well-intended it is. Of COUSE you feel bad, this sucks. But let her feel the AWE you have towards her strength. When she looks into your eyes (which will start soon if developmentally it has not already) let her see "OMG, kid, you are ONE TOUGH COOKIE!" rather than "Oh you poor sick kid, I feel so bad, what HAVE we done, will you ever forgive us?"

    Those are two different eyes to gaze into.  say both those things in the mirror and see what I mean. Upon my dx, my mom, the drama queen that she is, ran around the neighborhood saying "OMG! my child! my child!" and that ended REALLY quick as soon as I spent a week in the hospital (getting the brace fitted right) seeing all the kids (and families affected) who had it soooooo much worse than I did. Maybe someday my mom will see how tough I am. Le sigh, anywhoozles.......

    I know as a nurse you see this stuff, and you know this. You're allowed to punch me for saying this crap, I would understand. But someone said it to us, and it helped my family, so sorry, duck! it's coming around ;-)

    She's got this ;-)

    Join us - Commit Random Acts of Kindness, and say "I did it for Cricket" Cricket's Cadence
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