Please Share! Success after Multiple MCs?

UOduckBride2be · January 2011

Good Morning,

I am having a hard time finding stories of people in my situation to relate to. I am 36 and have been TTC #1 for going on 6 years. We have no diagnosis other than the fact that I am a "habitual aborter" and AMA. I have had an HSG and an RPL panel that came back with no issues. My RPL panel was done over a year ago so we are considering doing another one since things can change. As a precaution I went ahead and put myself on the PCOS diet last September, (figured it couldn't hurt). My Dr. also puts me on progesterone as a precaution even though my numbers don't require it. SA on my husband is great. I have to get RH shots due to my blood type, but my blood tests are not showing that I am sensitized, (which could cause MC). Is there a test or issue that I am overlooking? Am I just really unlucky? Anyone with similar issues that went on to have a successful pregnancy? I feel confident that with meds and IUIs I would be able to get pregnant again fairly quickly. I just have lost all faith in my body's ability to sustain it without a diagnosis, (and intervention based on the diagnosis). I feel lost and am running out of time.

Thanks, and if you think there is a different board where I should inquire please let me know. There just was not another that seemed appropriate to me.

Sarah

mrsolsenk12 · January 2011

I am so sorry you are having issues. Not having a diagnosis must be frustrating. I am sure there are some ladies here who can help. You can also XP to Pregnant after IF as well. There could be some ladies there to help as well. GL!

choco_lab · January 2011

I wish I had something to share with you. You might want to edit your subject line to include something about frequent MC to attract those that have been through it and can offer some insight.

smeyer · January 2011

I'm so sorry for your losses. ((hugs))

I was just shy of 36 when I finally got/stayed pg. My original diagnosis was anovulation (I was told by my 1st RE that I was an "easy fix"), DH was/is perfect. Nonetheless, it took us nearly 4 years, 5 IUIs, 3 fresh IVFs, and 2 FETs to get our babies. Since we were in the IVF stage, I think the differences were the tweaked protocol, assisted hatching and co-culture that finally helped us over the hump. Also, I had an abnormal saline u/s after my 4th m/c. We decided to check things out and lo and behold my RE found scar tissue that needed to be removed. Our FET after the hysteroscopy was finally successful.

I wish I had something more to offer. There's nothing quite like trying and trying but only having losses. It's like living in your own special hell.

DavezWife · January 2011

well, not sure I can help, but I'm in the same hell.... ;-( I'm so sorry you know this level of suck!

The timing of your losses suggest a couple things to me - clotting or thrombo issues, or chromosomal (balanced translocation?) issues. Those both tend to happen around 6-8 weeks, give or take a week. That's my opinion, based on observation around here, for the past 3 years. And FWIW, I pay attention to that. A hemotologist can test more for the 1st, a karotype on BOTH can check for the latter. (you didn't mention details on that, sorry) RPL panels don't go into enough detail.

My story is in my bio (kinda) but basically I've been pregnant 11 times, and lost what I believe to be is 14 babies. (feck) We've done a ton of medicated cycles (clomid and injectible IUIs) and IVF twice plus a FET after the last one. MOST are what I call "5 Minute pregnancies" which are chemical pregnancies in my chart. I get a positive home pregnancy test, run in for a beta, and it never gets above 50 and starts declining as I'm getting my period. Used to think I had low progesterone, then weak ovulation. Then crap eggs, then all of the above plus poor morph. Then IVF kinda proved that sure, it was a little of it all, but really, we were not that screwed. Then my body still kicked a couple of fantastic embies out a couple days after we put them back in.

So now we sit here diagnosed with an auto-immune disease of an unknown name.

Couple things I think you could do... find a RE that's willing to just treat you empirically with some things without going thru the expense and BS of the diagnosis themselves. That's our approach, and our depleted savings acct is grateful for it. We're under an IVF warranty (also grateful for it) and if we cycle again we'll choose, in addition to generic lovenox, ASA, lupron then gonal/menopur, dex, etc. to do prednisone for the entire pregnancy to ward off the affects of my AI disease. (per an immunologist)

There's a lot of buzz around reproductive immunology right now, SIRM/DeBeers, lots of stuff mostly on the east coast. Proceed with a grain of salt. Intralipids, IVIG, NKA, DQAlpha, LIT.... all stuff that is very valid in some eyes, very snake oil in others. (I'm personally on the fence, if you want to learn more we can talk off camera, lol)

I'd do a little more detailed testing, and perhaps either do local warranty IVF, or put all your eggs into one basket and do PGD at CCRM or something. I'm 37 with one healthy normal daughter that was a total fluke, so I know it can be done. I'm soooooo fricken determined to do it again it's unreal. But I know the toll it can take on a mind, a heart and relationships in this fight.

If you ever need to talk, please don't hesitate to email me, or we can talk on the phone/FB chat. david_and_tracie at ya hoo

Meanwhile, my mantra is yours if you want it... have the audacity to hope ;-)

UOduckBride2be · January 2011

Thanks for all the supportive and kind words. We are considering IVF, which could at the very least give us a better chance with PGD and ICSI and the assisted hatching to help us select the most promising embies to transfer, (since we have no idea if that is the issue or something else). I know that now there is no way I will be under 37 when I would deliver which means that we would not qualify for most of the shared risk options I have seen in my state. We have the funds to do 1 IVF OOP and an additional transfer if we had any make it to freeze, but that might be it at 100% OOP. I guess we'll see what happens.

Thanks again, Sarah

DavezWife · January 2011

we LITERALLY talked/BEGGED our RE into signing papers for our shared risk the day of my 37th bday. he didn't care when we delivered, just when we signed to start, and I literally had to take my 1st BCP that day, lol. We could still do shared risk later, but with less money back, and for about $5K more. They even had a donor egg shared risk. There ARE programs out there. (well, at least here)

I don't get a bday present for the next 10 years ;-)

and just food for thought, with my two fresh IVF's, we've made 3+4 "perfect" embroys. None of them have stuck. Now, chances are it's been b/c of my AI issues, but who the feck knows. They could be chromosomally bunk. So if you're dealing with more than a couple unexplained losses, you may want to SERIOUSLY want to insure any OOP money, i.e. a shared risk program of some kind.

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