April 2011 Moms

Update on Noah

Here is an update on Noah, I basically just copied and pasted out of my blog like I did last time. I'll try to get pictures up tonight or tomorrow.

 Well let me start by saying that Noah is doing about the same. Woke up this morning for the appointment, got ready, then drank the glucose drink they sent home with me last time. Honestly it wasn't as bad as what I had been told. The orange tasted like a melted ice pop. I still chugged it down as quickly as possible. We got there and went through the normal weigh-in (which I won't tell the results of.) : ) Then they drew my blood. After that we went to our ultrasound.


To DH and I's eyes, we thought that Noah looked a little worse. His chest still looked really small to us. His arms and leg bones are continuing to bend. One femur is worse than the other. It was almost at a 90 degree angle. It hurts to see his bones look like that. On an upside his hand wasn't in front of his face starting out this time. It has always been there. But as soon as the ultrasound tech got good and started, up went that little hand again. We had to laugh at that, he already doesn't like his picture taken. I would say he's shy, but with him being half DH, I seriously doubt that. 
After that the doctor came in. He started by saying that everything looks about the same. That was such a relief to hear. A few months ago I wouldn't have imagined being told about the same as that first 50/50 odds he gave us would be good news, but it is now. He said that while his chest is small, he said it wasn't overly small which was also good to hear. He also gave us another possible diagnosis. He said that he is still leaning toward the osteogenesis imperfecta, but that it is also starting to look a little like hypophosphatasia. He said that it could be the second diagnosis because of what he observes with Noah's skull. When he would examine Noah's skull, if he pressed down on my belly, we could see his skull bend a little. He also said that we could see Noah's brain anatomy really well because the bone density was low. While these are the two things he mentioned, he reminded us that we won't know anything for sure until after he is born. He could have neither of these. On another up note, he moved my due date up three days to April 6. So instead of being 28 1/2 weeks, I'll be 29 weeks tomorrow. He said he was cutting me a three day break. 
Overall the appointment went as well as could be expected. We would like to thank everyone again for their T&P. I know it's those prayers that are getting all of us through this.

Re: Update on Noah

  • Noah, you and your DH are always in my thoughts.  Thank you for the update.
                                                 Mom to 4 wonderful daughters
                                 Breanna, Ellie and 
                                 our 2 rainbow babies.

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  • Glad to hear things are the same instead of worse.  I've been praying for you and your family. 

    I know it is strange, because we don't even really  know each other, but I've woken up in the middle of the night several times thinking about Noah so I've been praying for his growth, your doctor's wisdom, and your strength.

  • Thanks for posting - I think of you often and continue to pray for you and baby Noah. He is a little fighter, I just know it! Your attitude and writing continues to impress me and he is lucky he has you as his mommy. ::hugs::
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  • Thank you for the update - you all continue to be in my thoughts and prayers.
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  • Thanks for the update, you and baby Noah are always in my thoughts and prayers.  I'm glad that your appointment was fairly uneventful, hang in there Noah and keep growing!
  • I will keep you all in my prayers and thanks for the update. 
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  • My prayers for Noah are continuing!! I admire your attitude and strength.
  • I don't think it's shyness.. I think it's stubborness.. which is a good thing in your case :) Glad things aren't worse.. that's a good thing to hear. Thinking about all of you!
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  • Thanks for the update! I'm still praying for you guys!
  • Thank you for the update!  I'm glad to hear things seemed to be staying the same.  Thinking of you and your family and of course little Noah. 
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  • You're in my thoughts, always. 
  • Thanks so much for the update. Baby Noah and your family continue to be in my thoughts and prayers.
    TTC #2
    BFP 3/28/16 (EDD 12/9/16) * Chemical pregnancy
    ME: 40 yrs.old
    DH: 41 yrs.old
    DD: 5 yrs.

  • Thank you for the update. I've been keeping you and your family in my thoughts and prayers.
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  • Thanks for the update! So many of us are keeping you and your family in our thoughts!
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  • Glad to hear that everyone stayed basically the same instead of getting worse!  I keep you in my daily prayers.  I even have my students (I teach in a Catholic School) pray for you and Noah when we say our decade of the rosary.  They always remember to pray for "Baby Noah" when I ask if anyone has intentions.  I hope that you continue to have the amazing strength that you have shown!

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  • I'm glad the appt went as well as it did and am continuing to keep you, your DH, and sweet Noah in my prayers!  Oh, and April 6 is my due date, too. :) 

    Expecting our 3rd little girl this New Year's!


  • Always thinking about you guys!

    Come on Noah, grow little guy, grow!

    IVF #1- BFP- DD 4/8/2011
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    Beta #2 (4w4d)- 4,577
    Beta #3 (6w0d)- 78,399 HB 115 bpm
    U/S #2 7w0d- HB 155 bpm

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  • I'm thinking about all of you. I'm glad the appointment went well.
  • I hope this little guy realizes how many people out here are pulling for him!  Big hugs!!!
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  • We have a stubborn/shy LO, too. always with the hand in the face ;-)

    Glad your appointment went well; you & Noah are in my T&Ps. 

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  • I have been following all of your posts and updates on little Noah, but I have never left a comment before.  Just wanted you to know that you have another person out there praying for you and your family.  I think of Noah often.  He is in my prayers.  Keep the faith!
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  • You and your LO are an inspiration - I think of you both often, thanks so much for the update! Stay strong <3
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  • Thanks for the update. You have such an admirable strength. Glad to hear that things haven't changed. I will continue to have your family in my thoughts and prayers.
  • Praying for you guys each and every day!!!
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