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Trouble TTC
Help Me Ladies: Endo
So the RE thinks I have Endo, which caused my blocked tubes. I am completely out of the loop here because I have not researched much endo related. Does it only affect the tubes? I thought it could get stuck everywhere and cause problems in the uterus.
Even if we bypass the tubes through IVF, can endo cause problems with implantation in the ute?
Any other helpful info on endo?
After 18 months TTC, our 2nd IUI brought us our BFP!
Stick baby stick!
This discussion has been closed.
Re: Help Me Ladies: Endo
https://www.endometriosisassn.org
Good Luck!
Were your blocked tubes discovered during an HSG? Endo can effect the entire pelvic area, ute, ovaries, tubes bowel, bladder, etc. There is not a lot of conclusive research as to how endo effects infertility. Obviously if it is blocking the tubes that is a problem, but there is also some research that suggests endo lesions release hormones that can have a negative effect on fertility. Some studies have also shown that 30% of women with endo also have autoimmune issues and increased natural killer cells(NKC) which can be detrimental to implantation.
I have stage IV endo, it is covering my ovaries almost completely, but my tubes are open. My RE believes that our only option is IVF because when my eggs are released they get stuck in the endo lesions and never have a chance to get fertilized. I have talked to him in-depth about the autoimmune issues and the NKC, he does believe that they could play a role, but doesn't see an increase in implantation rates or m/c in his patients with endo.
I've done a ton of research on endo, and what really resonated with me was making significant changes in my diet in a hope to decrease the negative effects of the endo on my eggs & implantation and decrease the chances of m/c. It's a pretty strict diet and it hasn't been easy, but I've seen some significant changes. For example; my right ovary was stuck to my uterus and it was always very difficult for the nurses to find it on an u/s. It's no longer stuck as badly and the nurses can find it very easily on the u/s.
Sorry, that got really long! Let me know if you want more info - I've done a ton of research on endo since I was diagnosed in October.
Thank you so much ladies for the info!
Mrs. Loos - so sorry to hear about your bad endo. How did they diagnose? My RE is pretty sure I have it based on what we have discoverd (AWFUL cramps, blocked tubes)
She is going to do an ultrasound to look around, so hopefully that will help look into some things.
I had a Lap done to diagnose - that's the only way they can definitively diagnose endo. I didn't have any symptoms other than a large complex cyst on my left ovary that my RE suspected to be an endometrioma. My gyn did my surgery and during my pre-op appointment she did an exam and saw a small endo lesion on my cervix so we were expecting to find some during the Lap, just not stage 4. All my docs are shocked that I wasn't in any pain.
Is your RE suggesting a Lap?
Both my obgyn and RE are against a lap for the blocked tubes. They say it can cause more damage than good.
My RE is recommending a "saline selective salpingography" - which basically is a higher level HSG. They try to push dye through and if they cannot get dye through, they use a needle to attempt to clean out the tubes.
The diet is SO HARD! I've been really strict about it for 12 weeks now and it is finally getting easier.
A lap is in my near future. I'd like to hear more about the diet. Mrs.Loos do you have a link for the diet information?
This is a good site for info on the diet https://www.endo-resolved.com/diet.html I bought the book they've got at the bottom of this page and honestly I haven't made one of the recipes out of it, but the first few pages have some really good info on what you should and shouldn't eat and why.