Small update on Noah

eaust6907 · December 2010

I haven't been on in awhile due to the holidays, but I went to the doctor yesterday and thought yall might want an update. I'm basically just copying and pasting what I put in my blog so here goes.

Well not much has changed with Noah, in three weeks his arms and legs grew about a week again, so they are at about 17 weeks now give or take a week. We are beginning to see some bending in his arm bones and also in his ribs from fractures reforming. His chest is small, his heart takes up a disproportionately large amount of it so that's still not good. The Dr. told us that he is leaning toward Osteogenesis Imperfecta. This is basically Brittle Bone Disease, but Noah has a severe form of it. He won't give a definite diagnosis until after he's born, but that is his best guess and DH and I are tending to believe him based on what we are seeing. Anyway, we decided I would be delivering by C-Section and we will get as close to term as possible. We can tell our Dr. isn't very optimistic about his survival past birth but he won't say that he won't live either. I think so that we can keep hoping.

I want to thank all of you that have been praying for Noah and for my DH and me. I know we wouldn't be making it through any of this without those prayers.

BBColt78 · December 2010

Hey sweetie- Just wanted to throw out there. . . I had a little boy in my class with this. The doctors told the parents he wouldn't make it past birth, then they said kindergarten. Well, I teach third grade and he was in my class and now he's in fifth grade and seriously one the most fun and charming students I've ever had.

Lots of thoughts and prayers to you and your family.

ckolak:-) · December 2010

Huge hugs to you.

1117breezy · December 2010

Continued T&P for all!!!

ecavin · December 2010

Thanks for the update, I've been wondering how you and Noah were doing. You are all still in my prayers!

jteneback · December 2010

You and baby Noah continue to be in my thoughts.

hf08 · December 2010

Thanks for the update. Continuing to keep you in my T&P!

Holly520 · December 2010

Continued T&P to you and your family.

Nanna · December 2010

Thank you for the update - I was actually just thinking of you and little Noah yesterday. Continued T&P for your family.

LadyXaverian · December 2010

I will also continue my T&P for Noah and your family.

Like a PP, I've had some experience with this disease as well. I have a cousin who is in his late 20s and recently married who was born with it. He is one of the most tech-savvy people I know. I don't know about the varying degrees, but I just wanted to share another success story. ((Hug))

grace782 · December 2010

Still praying for all of you.

Mella&T · December 2010

Still praying for you and baby Noah! ::hugs::

TeamK07 · December 2010

Thanks for the update - I will continue to keep Noah and your family in my thoughts. ((hugs))

ManiacMcGee · December 2010

You and Noah remain in my thoughts

smit3807 · December 2010

Thank you for the update. I have been thinking about you and Noah as well. I will continue to keep you in my thoughts and prayers.

kje120 · December 2010

Thank you for the update - you all continue to be in my thoughts and prayers.

Gina418 · December 2010

Thank you for updating. You are in my thoughts and prayers. God bless.

MG7 · December 2010

Hey there, thanks for the update, I've been wondering about you guys. I wanted to let you know that like the pp my mother has a student in her school with Brittle Bone Disease - she's in third grade.

I'll continue to keep you and your family in my thoughts...hugs to you!

Carbaby411 · December 2010

Sending some prayers to you and baby Noah - hang in there little buddy!

HydrangeaSunset · December 2010

You all will be in my thoughts and prayers.

SecondTimeinMSU · December 2010

I was just thinking about you this morning wondering how your appointment had went. Continuing to keep you in my thoughts and wishing the best for you both.

APrice4UT · December 2010

You are definitely in my prayers! I hope that sweet little boy grows like a weed and proves the doctors wrong! Good luck to you and your family, it must be extremely difficult to digest this news.

MrsLCH · December 2010

I am so sorry you are going through this. You and your family will be in my thoughts.

Kmhsswim · December 2010

Thanks for the update on Noah. Continuing to keep you and your family in your thoughts and prayers.

desdemona39 · December 2010

T&P for you, your dh, and sweet baby Noah

campbaby76 · December 2010

Thanks for updating!! I will continue to hold your family in my heart and in my prayers.

luvdv8 · December 2010

Hoping that he proves to be stronger than anyone anticipate- T&Ps for you little Noah!

lylahlove · December 2010

Thanks for updating us! You, your dh, and your sweet Noah remain in my thoughts and prayers

kim_and_tony · December 2010

There is a local girl here with a daughter whose case sounds a lot like yours. Check out her blog, they were told they probably wouldn't be taking their baby home and now she is on study.

https://eviejayne.blogspot.com/