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Saw the coolest kid today :)

Florak8Florak8
in Special Needs
Was at  a cafe visiting with a friend, and a teen girl in a motorized wheelchair was sitting behind us. I could kinda hear her conversation with her buddy. It was really neat because she was texting and gossiping and she just seemed so cool and well-adjusted. It makes me happy to see kids like that-- I guess it just reminds me that, even  if DS ends up in a wheelchair or on crutches, he still will be awesome, have friends and do regular teen stuff. :)
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Re: Saw the coolest kid today :)

  • Rachel&BradRachel&Brad
    That is great to see kids like that! What is your son's diagnosis?
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  • Florak8Florak8
    We don't have one yet-- symptoms are hypotonia and epilepsy and "weird eye movements". ;) I had been feeling down lately, just worrying about how he will handle school and being a teen someday. It was like God sent me to see that kid today, just to let me know it will all be okay. :)
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  • Rachel&BradRachel&Brad
    Smile
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  • lauraandleelauraandlee
    That is a great thing!  I ran into a colleague the other day and when I mentioned K's diagnosis, she said, "Oh!  My best friend's son has that!"  (Which is cool b/c he has a 1 in 100,000 diagnosis).  She went on to tell me that he's 16, totally normal (besides the daily meds, but we're cool with that).  It was so nice to hear a direct story of this normal kid, who is thriving, smart, doing well, despite a lifelong diagnosis. 
    Our Little Fur Family
    image
    My Three Sons
    #1: 2.06 #2: 1.08 #3: 9.10

    DS #3 diagnosed at birth with panhypopituitarism - lack of pituitary function. He is treated with thyroxine, hydrocortisone, growth hormone and testosterone.

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