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Repeat Swallow Study= Awful!

MbitnerMbitner
in Special Needs
Well, last night Aiden got really sick- took him to pedi.  He has croup, sinus infection, and was wheezing.  But, I thought we would try and continue on with the swallow study and post-op appt at MUSC today.  WRONG decision.  :)  It was awful.  He was terrified of the xray machine etc (same one we have been using for the other 5 swallow studies....just at that age where they get hard.)  He took a couple (prob 2 sips) and bawled the whole time and refused to drink more.  ALl we could see was that his swallow was still delayed.  In 6 months we will decide to do another swallow study ot FEES test.  Anyone else done a FEES test?  Thanks! 
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Re: Repeat Swallow Study= Awful!

  • Assembly_ReqdAssembly_Reqd member

    Oh no! Poor little guy! I hope he is feeling better soon.

    I do not know anything about an FEES test.

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  • iowagirl73iowagirl73 member
    I am so sorry that he is so sick and that the swallow study didn't go well today!  I don't know anything about FEES tests but I hope he is feeling better tomorrow!
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  • GreenEyesinNCGreenEyesinNC
    A FEES test is a small camera that goes in the nose and down the back of the throat. I'm an SLP for adults and I do about 6 a day!  They are pretty uncomfortable and I can't imagine doing it on a small child... not sure who recommended it or why but I would still with the video swallow studies if possible as they aren't invasive.
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  • thefuturemrskudlathefuturemrskudla member

    I am so sorry to hear this - I don't know anything about these specific issues, but have had similar experiences with DS when we have to have  specialized and unpleasant audiological stuff and he's under the weatherr (like today).

    It really astounds (and humble) me when I think about what our children endure and how resilient they are.

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  • MbitnerMbitner
    Thanks for the support ladies.
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  • MbitnerMbitner

    imageGreenEyesinNC:
    A FEES test is a small camera that goes in the nose and down the back of the throat. I'm an SLP for adults and I do about 6 a day!  They are pretty uncomfortable and I can't imagine doing it on a small child... not sure who recommended it or why but I would still with the video swallow studies if possible as they aren't invasive.

    Yeah- I researched it.  An ENT from Cincinnati first recommended it when he was about 4 months old and we were preparing for his laryngeal cleft surgery.  We opted not to do it there and didnt do the test. The other day the SLP doing the swallow study (she has des 5-6 of them with Aiden) and the ENT both suggested it.  They acted like they do it frequently with pediatric patients.  Aiden is scared of the xray equipment and they felt that he may do this the next time- thus not getting much useful info.  But, like you I was leaning towards trying a swallow study again- Aiden hates the scope...and the ENT said it is a similar camera that they use.  Thanks!  

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