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XP: Intro and a question about hemangiomas

emsummemsumm member
in Babies: 3 - 6 Months
I wanted to introduce myself and ask a question about hemangiomas...I've been lurking here for a bit (and have posted a few times) and appreciate all of the advice I've received, so I wanted to say hello officially.  My name is Emily, I'm the mom of 5 month old twin girls, Naomi and Maya. I'm wondering how many other moms have a twin with one or more hemangiomas?  One of my babies has three, the most prominent one located on her hairline.  She is being treated with propranalol, and is responding really well to it.  Anyone else using this treatment?If so, and if you are giving your lo any other oral medication other than propranalol,  how in the heck do you get them to take it without a struggle??  At first, she didn't mind a bit, so I don't think she dislikes the flavor, I just don't think she enjoys the sensation of the syringe in her mouth.  She has started to clamp her mouth shut when she sees me coming..any suggestions??
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Re: XP: Intro and a question about hemangiomas

  • riserstriserst member

    Hi Emily,

    I have a son who will be 6 months in a few days. He has 3 hemangiomas as well. (One large one on his right thigh, one on his right foot and one on the inside of the tip of his nose). We have been on the Propranolol 20 MG/5 ML Soln for almost 2 months. We are now up to 2.3 ml every 12 hours. Our dermatologist has only put him on the medication because of the one inside his nose because generally they will get bigger before getting smaller. The fear would be that his nose would become misshapen as he grew and the hemangioma grew against the cartlidge in his nose.

    We had a hard time getting him to take the medication as well. Doc had sworn he would love it!!! haha.  Doc gave us the ok to put the medicine in his bottle each morning and nite. I normally make him a smaller bottle that I know he will finish so I know he is getting his full dose of the medication.

    We also give him Tylenol as needed through a bottle as well. It is much easier than struggling with them to take the med.

    PS. I do not have twins, but my first born daughter (13 years) also had a hemangioma on her head when she was younger. This was left untreated and went away on its own around her 4th or 5th birthday.

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  • Haven1Haven1

    Hi!  First, I love your siggy pic.  Big Smile

    Second, I also have twins with hemangiomas on both.  DS1 has a large one on his leg, and DS2 has one on his cheek.  (They also both have small ones on their heads.) 

    My pedi told us they were likely to go away on their own, so we aren't treating with anything right now.  I don't even notice the one on his cheek, but I do hope it fades some day for his sake. 

    Good luck with getting those meds down.  Babies sure are smart about avoiding things they don't like!

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  • emsrdh03emsrdh03 member
    DS has one on his hand.  Pedi said to would most likely get bigger, but eventually will go away on it's own.  We aren't currently doing anything to treat it.
    photo 7ce353dd-36ff-42be-84c5-8548c1d4fa1cjpg
    BFP #1 11/28/09 ~ EDD 8/6/10 ~ DS Born 8/9/10
    BFP #2 8/27/13 ~ EDD 5/8/14 ~ Natural MC 9/18/13 at 6 weeks, 6 days
    BFP#3 3/28/14 ~ EDD 12/7/14 ~ DD Born 11/21/14
    BFP#4 6/15/17 ~ EDD 2/20/18
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  • emsummemsumm member

    Thanks so much for your responses!

    Riserst:  Good tip with the bottle!  I know you're not really supposed to give meds that way but it's totally what I was considering doing and I'm glad you do it, it makes me feel better!  The one in Maya's mouth went away really quickly, I wonder if the one in your son's nose will do the same.  In any case, it's always nice to hear about kids like your daughter who've had them go away.

    Haven:  Thank you!  What cute boys you have :)  It's funny, I don't really notice Maya's either, but I think they're pretty obvious to others, and I, too, want to get it treated before she's treated differently.... fwiw, I probably wouldn't have noticed your son's, but I got excited to see another bebe with a strawberry! 

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