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XP helmet mommies

Lanny02Lanny02
in Special Needs
Do you have a helmet or Doc Band?  We just got a helmet from Hanger.  We saw our PT today and she thinks we should go down to Cranial Technolgies and possibly look into getting a Doc Band instead.  Basically she said our helmet is a POS and was poorly made...   The thing doesn't even fit her head, when the clinician was taking the cast of her head he f-ed it up when she was removing it.  I'm so confused...  Any insight would be appreciated
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Re: XP helmet mommies

  • Florak8Florak8

    We had a great experience with our Hanger helmet. Our orthotist used a scanner, rather than making a cast, though. Any helmet is going to leave some red marks and need adjustments-- both at first, and as the child grows.

    What is your LO's condition-- plagiocephaly, brachiocephaly, etc.? Ours was for plagiocephaly.

    I would suggest calling the Hanger office, and showing someone higher up the helmet. I am pretty sure they will want to correct the situation. I am surprised they did a cast, rather than using the scanning technology.

    I understand what you are going through, because we went through it with a local company who made DS's first helmet. We wasted a good 6 weeks trying to make that one work. Whatever you decide, I would move quickly because there is a limited window of plasticity in the skull.

    Good luck, and let us know how it goes! 

    .
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  • Lanny02Lanny02

    She has plagio with tort.  Her face is distorted from the plagio.  We have an appt with Cranial Tech next week to see what they say and go from there I guess.  How frustrating.  I know plagio isn't really considered special needs but I thought I might get some answers on this board.  Thanks for your input!

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  • emberlee3emberlee3 member

    I am sorry that you are having trouble with your helmet.  We had a very good experience with DS's helmet.  It was custom made by a local orthotics place from a cast made of DS's head.  We had to get it adjusted a few times in the first couple of weeks.  After that, we went monthly and never had problems with redness or marks.  We didn't really get a choice about the type of helmet; this was what the surgeon prescribed.

    This is what the helmets look like:

    https://www.rhs-tn.com/pediatric_helmets.htm


    DS born 8/8/09 and DD born 6/12/12.
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