Preemies

Jocelyn's Update

Jocelyn is a true testament to the "honeymoon phase" that was described to Jimmy and I after she was born. She was doing well for the first couple days, better than anyone thought...until early this morning. When we arrived at the NICU this morning they had informed us that they when they drew blood for a lab test, she continued to bleed and asked for a family history. They had taken a picture of her for us to include in our Christmas card and she honestly looks 10 times better than what she does in reality. Today she was strapped down in the incubator, which hadn't been done previously because she was doing so well. I stayed for a long time after Jimmy left for work and then when my mom came to visit Jocelyn we both shed a river of tears. The nurses told us that Jocelyn needed her rest and we both looked extremely tired. They advised us to spend a day together, finding time to be with each other. We took this advice and spent a day Christmas shopping at the mall. Have any of your babies experienced this honeymoon phase?

Re: Jocelyn's Update

  • I am there with you. The first set back is so hard. I broke down just like you did for each of the girls when they had their first set back. I felt so bad for crying in front of the girls, I just knew that they knew I was worried and upset so I would not let myself cry at their beds, but then I felt guilty for not being there starring at them and trying to stay at of the nurses way. I dont know if things will get easier but I pray that they will for you and me both!
    Lilypie Premature Baby tickers
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  • I was told that the hardest thing I'd ever have to do was give birth. I can't remember who told me that but now I feel like I should tell them that giving birth was the easiest part of this whole thing. Jimmy and I are keeping you and your family in our prayers. We're all hoping things go well
  • DS came out doing worse than expected, esp. for a 34w5d preemie. He needed CPAP and O2 right away. He seemed otherwise pretty stable at first.

    48 hrs later, and of course just before I was discharged, he was really laboring to breathe too much and was having apneas/bradys. They had to intubate and fast. I remember we had walked down to the NICU (I was up and walking but slowly), and we got there just after they had finished. I just bawled. Going backwards makes you worry they'll never move forward again. 

    I'm sorry she had a bad day. I hope they figure everything out with regards to the bleeding and that she's doing better tomorrow. :hugs:

  • Wow that takes me back!  I teared up reading your post Sad!  I rarely think of my son's NICU stay now (he'll be 8 months in 2 weeks!), but I so feel for you, I know how hard it is to be there, it's actually kinda undescribable unless you've been through it Tongue Tied  I remember one of Connor's "set backs" was when they had to put a feeding tube in after he had been drinking from a bottle.  Oh I cried and felt just devasted!  It seemed sometimes we were never going to get out of there!  One of the things that kept my spirits up was one nurse who liked to remind me when I was especially sad that "Look!  There's no kids running around the NICU!  All the babies go home eventually!  They don't grow up in the nursery!"  Made me feel a little better.  I hope you feel better soon too, it will be over and a distant memory before you know it!
  • I hate setbacks too :hugs: I'll keep you and your family in my prayers
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  • ((Hugs)) Setbacks are the worst! DS did so well the first day, but he went backwards quickly after that. His feeding started to go downhill and everything had to be gavaged and then we had many, many platelet and heart rate issues. His platelets bottomed out, but just before they were going to transfuse him, his platelets started going back up on their own. GL to you and your LO. I hope things start to look up soon!
    Lilypie - Personal pictureLilypie Premature Baby tickers Photobucket
  • I'm sorry. Hugs!
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