Isaac was hospitalized with RSV pneumonia this weekend. His sats dropped to near 80 and he was taken to the hospital via ambulance from the dr's office.
He recovered swiftly from the breathing difficulty and was weaned totally off oxygen within 36 hours and we brought him home yesterday.
His doctor has stepped up his breathing treatments to Xenopex rather than Albuterol for 24 hrs. He does better and is less wired on this medication but apparently it is really expensive. I am thinking of insisting on this medication from now on regardless.
The dr pretty much said he won't get all the way better until Summer. Is this true? I haven't had a decent night's sleep in months and it just seems to get worse and worse. There is no such thing as an Isaac nap in this house whatsoever. I don't know if I have 4-6 months of sleep deprivation in me.
In conclusion this RSV experience has been so incredibly difficult don't expect any BFP announcements from me pretty much EVER.
Re: RSV Recovery - What to expect?
It is unfortunately true that he won't get all the way better until summer. After we got home with Jackson he was on the neb 6-8 times a day for 8 weeks. Then 2-3 times a day for 6 weeks and honestly on demand after that until summer if he even coughed or wheezed funny. It's no fun but, you and they get used to it. We did xenopex but, only when his breathing got really bad. The albuteral and steroids did the trick the rest of the time.
The sleeping with an RSV baby is tough! Honestly, Jackson's breathing was so shallow at night we brought his pack and play in the room and let him sleep there and then eventually moved him in the bed with us. It was worth the sleep to us. Not that I am suggesting that to you but, it is nerve racking. Good Luck. Hang in there it does get better it just takes time.
Same for us, ds wasn't hospitalized but did have to do breathing treatments for maybe 2 weeks? I guess he had a mild case because he was better in about a month. Good luck, I know how hard it is!
Abigail Taylor 09.18.2008