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when did you find out?

krisnolan22krisnolan22
in Special Needs
How old was your LO when you found out they had special needs?
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Re: when did you find out?

  • thefuturemrskudlathefuturemrskudla member

    At birth.

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  • Erin0922Erin0922 member
    birth
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  • mskolmanmskolman member
    20 week ultrasound
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  • autumngirlautumngirl
    she was diagnosed at age 2 (through blood work)
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  • am369am369
    3 days old, though we had suspected earlier and everyone told us we were just "crazy first time parents"
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  • Assembly_ReqdAssembly_Reqd member
    birth
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  • amajaneamajane member
    18 week fetal survey though it was vague. Everything was revealed at birth and then more over the first 2 years.
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  • lujainlujain member
    We had DD evaluated at 12 months, and that's when we found out about all her developmental delays.
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  • nictelnictel
    It was a growing realization as DS got older, and has since become more refined and clarified.  He was born premature, so we knew that we would likely have some delays related to prematurity.  He rolled over on time, and sat up at 6 months.  However, he didn't start crawling until 13 months, so by then I knew there was something wrong.  At the time we were assured it was due to prematurity.  However, by 18 months, he had just started pointing, and was only babbling (minimal).  He didn't walk until 19 months, and started receiving EI.  (He was evaluated at 12 months but didn't qualify).  At 2 I was convinced he had ASD (even though my EI team disagreed.)  I had him evaluated at 26 months and received a diagnosis of a motor planning disorder (dyspraxia).  I had him reevaluated last week and received the same diagnosis of oral / motor dyspraxia.  For now, that's where we stand.  It's an ongoing thing, but as he gets older I get more specific information.  Right now, the motor disorder really explains his delays.  We'll see what happens in the future.
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  • mackislandbridemackislandbride member

    20w u/s revealed heart defect and leg abnormality.

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  • afwifestrecker7706afwifestrecker7706
    10 months old. He was behind on everything and started PT at 9 months who sent us to OT cause she knew right away something was up. Got the SPD dx at 10 months. Seeing the developmental Ped in Jan to see if anything else.
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  • iowagirl73iowagirl73 member
    Officially diagnosed with the major item at 9mos, 3wk, 3d but I had my concerns way before then.
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  • soontobeahighsoontobeahigh member
    We had an amnio at 17 weeks.
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  • princesstggrprincesstggr
    day before she was born on bedside U/S
    Mommy to an amazing toddler who happens to have had a stroke, bleed, hydrocephalus and CP... and is kickin' it's butt :-)
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  • Sheila92003Sheila92003 member
    DS was diagnosed with PDD the day before he turned 4.
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  • skittles_123skittles_123 member
    2 yrs 11 months
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  • duchess0727duchess0727
    We became aware of issues (her heart problems, small size, etc) when I was 26 weeks pregnant.  Her microcephaly and delays were identified at 4 months.
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  • TKx2TKx2
    9 months. 
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  • Mrs.RoseMrs.Rose member
    6 hours after he was delivered by emergency c/s he started seizing.  The next day we found out about the oxygen deprivation and brain damage.
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    Carson Henry, born 39w, 2d, via emergency c/s due to no fetal movement and fetal distress.  Seizures, IVH grade 2, brain injury, kidney and liver damage.  Complete blood clot in the artery in his right arm.  27 days in the NICU.  Now discharged from all specialists, excepts his kidney doctor, who will monitor him indefinitely.  My tough little cookie.

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  • KeriMichaelMarieKeriMichaelMarie
    9 months old for developmental delays
    M/C 04-1999 Missed M/C 04-20-2005 M/C 11-09-2006 DD - Sable Ren
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  • hopankahopanka member
    2.5 years old. ASD
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  • PDXPDX
    the heart defect was missed at at the prenatal screenings. we knew there was potentially something wrong at birth and had the official dx at 8 hrs.
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  • blissfully_caffeinatedblissfully_caffeinated
    I knew something was wrong around 5 months. Everyone kept telling me it was normal. Last week he was diagnosed with FTT. It's clear to me that his development is suffering because of that. He has already stopped rolling places. I imagine it will take some time to get more answers and address things.
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  • BeachBride2007BeachBride2007
    17weeks 4days, by ultrasound. I am an OB nurse, and my friend at work(ultrasound tech) did the ultrasound and found it.
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  • galwaygalway
    his hypoplastic thumb was identified at birth - and the other abnormalities were identified over the next few days and months.  Just hoping they're done finding "stuff"....
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  • mommyof4boysmommyof4boys member

    With Matt- We figured out something was "up" around 2.5 when he wasn't caught up to his peers.  He was dismissed from a premiee clinic at 2.5 and they said he was delayed but not enough to get services;still don'tknow his official "why"..

     With Jon- Around 3.5; still don't know his official "why".

    With Chris- Looking back I knew around 3 months old.  I questioned the doctors at his 2 month appoitment, again at his 4, 6, and 9 month appoitment and was told I was being paraniod.  After he started seizing at a birthday party I questioned more and no one took me seriously.  It wasn't until 15 months old that anyone agreed with me.  We got his "why" at 2.5, a rare genetic syndrome and PDD_NOS.

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  • *speedracer**speedracer* member
    got a hint at the 12 week ultrasound.  found out for sure at 20 week ultrasound.
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  • nanakwaznanakwaz
    A couple of his anomalies were discovered at birth then we kept finding out new ones over the next 6 months.
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  • lauraandleelauraandlee
    4 hours after birth when they finally had him in the well-care nursery and his blood sugar was only 19.  The next time I saw him, he was under an oxygen hood, a dextrose drip, and the ped on call guessed his diagnosis but was 100% correct. 
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    My Three Sons
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    DS #3 diagnosed at birth with panhypopituitarism - lack of pituitary function. He is treated with thyroxine, hydrocortisone, growth hormone and testosterone.

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  • AB&TBAB&TB
    At 1mo he started seizing.  At 2mo he was diagnosed Infantile Spasms via 24-hr video EEG & Tuberous Sclerosis Complex via MRI.
    imageimageimageimageimage 9/07 m/c baby boy @ 18wks, 4/09 m/c @ 4.5wks
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