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Parenting after a Loss
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I need to stop reading NT scan posts.

jeffraejeffrae member
in Parenting after a Loss

Rarely am I catty on these boards.  Rarely do I get into debates.  But UGH UGH UGH - theses posts are driving me nuts!  I think I need to stay off of the May boards until the NT scan frenzy is over. 

Wonder what they heck I am talking about....the post was "Anyone else not getting the tests done for Downs and Cystic Fibrosis?"

1st post: We didn't get them done last time and I don't think we are going to this time.  I guess because it's not like it would change anything by knowing and the tests aren't 100% anyway.  I feel like everyone on the boards is talking about getting the tests done, though.  I'm just curious what your reasons are for either doing the testing or not doing the testing?  We need to make our final decision soon.

my response:  Nope.  I had a false positive result last time (1:8 result for T18).  That in itself scared me from doing it again.  So as much as it sucks....I am just waiting until we can get our anatomy scan - luckily my OB will have us do this at 18 weeks.

My response to another poster referring to my post:

imagetokenhoser:

My reasons for doing it are that I would want to be as prepared as possible, both emotionally and medically. If my baby has Down's, we won't abort, but we will want to deliver in a facility best suited to deal with it, seek consults with the best doctors available, read a ton of stuff.

There are lots of reasons to want advance warning that don't involve termination.

ETA: The NT scan and quad screen can't give a false positive. It gives odds - like the 1:8 pp got. That's 7:8 that nothing is wrong, and nothing was. That's not a false positive or a test failure, that's poor explaining and not understanding what testing can and can not tell you.

Rarely do I do the bump-argue dance.  But here I go.  My OB even uses the term false positive.  Yes - it is a ratio.  But when you get a high ratio back - every hair on your body stands on end until you know for certain.  Anyone who gets an undesirable result holds onto that small chance something IS wrong.   Stand in those shoes and then make your statement. 

And for those that want to be prepared....well, I am getting an anatomy scan at 18 weeks.  So, I guess I will be blissfully unaware and 6 weeks less educated on defects then I would be otherwise.  Oh wait - I had about 10 u/s last time, a bad result, and I still was not prepared for the multiple heart defects DD was born with - that no amnio would have detected.   Damn.

 

Okay....I am done.  Someone please tell me to stop looking at them!

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Re: I need to stop reading NT scan posts.

  • eas15905eas15905
    Take a deep breath and step away from the May board.  Honestly, it's not worth getting upset about because they have their minds made up about what they are going to do and why.  You just need to do what is right for you guys and let them do what they want to do (although it is hard not to argue with someone who's wrong).
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  • jeffraejeffrae member

    imageeas15905:
    Take a deep breath and step away from the May board.  Honestly, it's not worth getting upset about because they have their minds made up about what they are going to do and why.  You just need to do what is right for you guys and let them do what they want to do (although it is hard not to argue with someone who's wrong).

    Thanks...just took a deep breath.  I stay off the tri boards and go to the may board since I don't really feel like I belong on PgAL.  I need to just stay here.  So much for a quick work break to refresh my mind before I go back to working a presentation.  lol.

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  • roundtheworldgirlroundtheworldgirl member
    Yep, step away.  I find The Bump in general to be pretty testing-happy.  There are lots of posts that I just don't open because I don't want my bp to go up.  It's not worth it!
    Traveling the world with my girls - born 12 months and 18 days apart.
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  • CapeFall2006CapeFall2006
    No more May board!  Seriously, stay away from any NT scan posts; it's just asking for trouble. :)  Let people be blissfully unaware of the possible negative effects of the scan and pray that they don't have to go through what you went through by getting worrisome results.  So excited you are expecting again!
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  • GoBleuGoBleu member

    when i encounter such people i try really hard to stop and think "universe, forgive me if i have ever sounded so stupid and made someone feel the way i am feeling right now."

    i experienced an ectopic pregnancy in march 2009 and in dec 2009 received an nt scan with measurements that had my doctors tell me LO's chances of a chromosomal "abnormality" were 40%.  turned out i was in the other 60%.  having a loss and then having nt results such as ours is a unique experience and you are kind to give advice and wisdom to others considering the test. but don't even give a second thought to someone who is interested in a discussion on semantics. not worth your energy or time.

    btw, i see you are dairy free. i just started this week.  might be contacting you for tips or advice :)

     

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