Success after IF

u/s was a nightmare - possible spine issues

Eliza's ultrasound of her sacral dimple/spine and her kidneys was today and it was a complete nightmare. She screamed and thrashed and generally lost her sh!t the entire time.

Good news - her kidneys are normal.

Bad news - the spinal u/s was inconclusive and may indicate a low lying/tethered spinal cord. 

Tech seemed pretty confident spine was abnormal, radiologist was less willing to commit for 2 reasons:

1.spinal u/s is very difficult at 9mo because the bones are dense and it is difficult to get a good picture/count of the vertebrate. Much easier and more conclusive before 6mo old.

2. baby needs to be completely still and Eliza was uncooperative. 

Radiologist spoke to me at length and felt badly that he could not give me a conclusive answer. Eliza had a spinal u/s at birth that was supposedly normal, so either they made a mistake then, or today's results are wrong due to reasons 1 &2 above. 

Next step - order images and report from her newborn u/s and compare. If it was normal then, it is normal now and if it was abnormal then, it is abnormal now, but it is not a condition that would have changed since birth. He did say that if it is abnormal, it is borderline abnormal/normal.

If it is still inconclusive, she will need an MRI under general anesthesia which radiologist will not do unless 100% necessary.

It is going to take a few days to get the original report, so for now we just wait and try not to consult Dr. Google too much! I am trying not to stress...

 

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Re: u/s was a nightmare - possible spine issues

  • Oh my goodness, that sounds so stressful!! I hope everything turns out normal and you can be done with this nightmare!
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  • I'm so sorry, so stressful!  I hope that everything turns out to be fine!  keeping you all in my thoughts.
  • Oh dear, it sounds like you have had quite the day!  I hate this kind of ambiguous dr. report.  I hope as soon as they look at the newborn u/s they'll see that she's A-OK!!
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  • Oh dear....I'm sure the newborn results will stand and she'll be just fine, but waiting must SUCK.  hang in there!!
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  • ugh!!  i hope they are able to see some good news from the newborn films!
  • I'm sorry you're going through this.  It's good that the original u/s appeared normal, though, and that the radiologist had his doubts about the tech's diagnosis.  (I once had a u/s tech tell me I had a bicornuate uterus, which I defnitely do not, so I'm a little sensitive to their opinions.)  I will keep my fingers crossed that you get good news soon.  Hang in there.
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  • What a horrible experience all around.  I am sorry you are going through all of this.  I will keep you in my thoughts
  • Aw, I'm so sorry you're dealing with this.  Fingers crossed. 
  • Ugh -- that sounds like a scary and stressful experience.  I'm sorry you don't have answers yet, and I'll continue to keep you in my thoughts.

                                  

      
                                   
  • Oh hon...that all sounds so stressful and scary! Hang in there. I am hoping you guys get reassuring news soon. Hug!
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  • Techs should NEVER diagnose.  I am almost certain that it is not in their scope of practice...and it freaks parents out.  Been there, done that, got the t-shirt, unfortunately. 

    I would bet money on a normal spine for sweet Miss Eliza.  Try not to worry too much...I know that is easier said than done...hang in there, Mama!

     

  • i am so sorry....we took Asha to the pedi today and he admitted there was a deep sacral dimple that everyone missed at her birth....to be fair my mom is a mother/baby nurse and examined her carefully at birth and changed her diaper for 3 wks and missed it.....he said with her leg strength and tone that it was unlikely there was a spinal issue but wanted an u/s to be safe...

    so we are waiting for them to schedule an u/s and hopefully wed we will know....i am terrified she has kidney issues or spinal issues...this is such a nightmare...

    i really hope your DD is fine

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  • thinking of you.  I know how hard it is to not have definitive answers.  Hoping that you get good answers soon....
  • I'm sorry you are going through this. I'm glad to hear that her kidney's are fine, and I hope that everything is okay with her spine as well. Hang in there momma!
    TTC for 19 months. Dx: PCOS. 3 IUI's with Clomid= BFN 1st IUI with injectables= BFP imageBaby Birthday Ticker Ticker
  • Oh, Em, hang in there!  Many prayers that everything is normal and they just couldn't tell today because E was acting like a typical uncooperative 10 month old!
  • imagesliz:

    i am so sorry....we took Asha to the pedi today and he admitted there was a deep sacral dimple that everyone missed at her birth....to be fair my mom is a mother/baby nurse and examined her carefully at birth and changed her diaper for 3 wks and missed it.....he said with her leg strength and tone that it was unlikely there was a spinal issue but wanted an u/s to be safe...

    so we are waiting for them to schedule an u/s and hopefully wed we will know....i am terrified she has kidney issues or spinal issues...this is such a nightmare...

    i really hope your DD is fine

    Thank you!

    I am so glad you had it looked at and they are going to do further testing. Your daughter is at the perfect age to get a clear and conclusive test - GOOD LUCK! Keep us posted!

    Baby Birthday Ticker Ticker Baby Birthday Ticker Ticker TTC since Dec '04 Severe MFI-diagnosed 12/06 3 failed Fresh IVFs FET #1 - BFP!! 2 blasts tx on day 6. Beta #1 8dp6dt = 56, Beta #2 = 600, Beta #3 = 5600 My Blog Image and video hosting by TinyPic Image and video hosting by TinyPic
  • THANK YOU everyone!!! I will be sure to keep you posted!
    Baby Birthday Ticker Ticker Baby Birthday Ticker Ticker TTC since Dec '04 Severe MFI-diagnosed 12/06 3 failed Fresh IVFs FET #1 - BFP!! 2 blasts tx on day 6. Beta #1 8dp6dt = 56, Beta #2 = 600, Beta #3 = 5600 My Blog Image and video hosting by TinyPic Image and video hosting by TinyPic
  • Ugh - I hate that you have to worry about this! Fingers crossed that this is a mistake and the normal ultrasound at birth was correct. (((HUGS)))
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