A HUGE step backwards... T&P's please

Amanda705 · October 2010

After 4 good weeks of being on the nasal cannula, Eden had to be reintubated on Thurs. I have never cried so much in my life, my heart is aching and my whole body is numb. She was struggling for every breath and working too hard to breathe, so there was no other choice but to reintubate. I know that God only gives us what we can handle but I'm seriously at my breaking point. I can barely take care of myself let alone try to comfort DH. Their due date is tomorrow and I have to go back to work on Tues...

Any words of comfort would be much appreciated. Full update in blog below.

Leigh71 · October 2010

((((((HUGS))))))

I'm so sorry she had to be reintubated. She can now relax and let the ventilator help her...as she and her lungs get stronger each day. Before you know it, she will be graduating back to cpap/NC soon.

My Lauren struggled and fought so hard to breathe. we were in NICU 5 weeks. I ask the neonatologist if she could go home on Nasal Cannula. He said no.

I didn't give up. (He had really discouraged me, and I cried for the entire weekend...) That following monday, I got the courage up to be firm and ask a different neonatologist the same question. She agreed...and said yes to going home on oxygen. Lauren has been on a NC for 3 months at home. She just "graduated" from her Oxygen on friday. I'm so glad I didn't let him crush my hopes of taking her home on oxygen. Instead, I asked someone else. I share this story to say..... as a Nicu mom, it was so hard watching Lauren struggle to just breathe...even on the oscillator. I am sorry Eden went back to a vent, but she can have some rest for a little bit....

You will be home soon Mama. Each day in NICU can feel like a week.... Thoughts and prayers for you.

jlh123 · October 2010

I'm so sorry, what a hardship you are going through. I'm sending tons of thoughts, prayers and hugs to you. My only advice is feel what you need to feel through this while staying strong as you can for Eden and your family.

Sweets2005 · October 2010

I'm so sorry. Lots of T&P your way! HUGS!

ShannonSky · October 2010

Sweets2005:
I'm so sorry. Lots of T&P your way! HUGS!

This!

ssg73 · October 2010

I hope eden gets stronger soon and can be off the vent. Hugs. The homestretch in the nicu was the toughest for me. The closer we were to going home the more I wanted it and the harder it was to wait.

beyoga · October 2010

Hugs & Prayers to you! We will continue to pray for you. Sometimes I think God gives us hardship so we can be of help to others. We have a 24 weeker that was born on Oct 2nd and my sister has a friend who went through the same thing and she is such a help to me. Keep us posted and we hope for the best.

Bippy798 · October 2010

I am so so sorry that her lungs are acting up! I hope she gets past this soon so she can come home to you!

ESM354 · October 2010

So sorry to hear of the setback. I know they prepare you for them in the nicu but that doesn't help at all when they actually happen. Like other people said try to find reassurance in the fact that she can rest some now and let her lungs grow and get stronger. She will be off the vent again soon!

njdcgirl · October 2010

I'm sorry about the setback. I can imagine how hard this is on you all. Lots of prayers out to her and hopes that she can turn things around quickly. ((HUGS)) to you.