I've been lurking a little on here...and expect I'll be doing even more in the coming weeks. My DD had suspected seizures at 4m with uncontrolled eye movements. We had a normal EEG and an MRI that showed a venus angioma (but thankfully no tumors or strokes) and small spot of old blood that might have been a hemorrhage (and might explain the eye movements?) in her cerebellum.
We go back in a few weeks for a second MRI to focus on the blood vessels closer. Then...we see if it's resolved, or worse, or arterial, or likely to repeat hemorrhage, or need a second opinion, or need invasive intervention, or, or, or... :
It's been a hard thing to deal with already (and I know many deal with far more, and far scarier things then we are)...and I try to stay calm and not let panic get to me, and not dwell on the negative. She's just such an amazing little girl...I pray it all turns out okay. Anyways, thanks for letting me join in here...nice to not feel alone.
Re: Intro too : Venus angioma / hemorrhage?
Hi there! There are a number of moms on here who are dealing with various brain issues (myself included). I have found a lot of support here not only for discussing my son's condition, but emotional support as well.
I hope your DD's next MRI will show great things! Keep us posted.