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Hi. I'm hoping someone might be able to offer some assistance, or just words of encouragement. My 8 month old daughter is currently being evaluated to determine the cause of some delays. Around 4 months old my husband started commenting that he thought she couldn't hear well. I mentioned it to my pedi, but she said she had passed her newborn screening and thought that everything was fine. My DD is a very easy going baby and we then thought she was just very content and laid back. She rolled right on time, but seemed to have trouble holding her head up. Her 6 month appointment wasn't done until almost 7 months. At that point she was not even close to sitting on her own and still having trouble holding her head up for an extended period of time. We were referred to early intervention. It took forever to get the appointment, they finally came last week. The outcome of that appointment was they found her to only be at a 4 month age level. They thought that not only did she have possible hearing problems, but also vision. She can see, but they questioned her peripheral vision. And they are concerned because she seems to favor her left side for everything. We are going into Mass General in Boston next week to meet with a pediatric neurologist and having her hearing and vision tested also. Just wondering if anyone else has a child with similar problems? Thanks!
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Re: New here
DS2 was diagnosed 2mos ago with cerebral palsy. While he has head control, he still cannot sit on his own (he will be 1 on Saturday) nor can he crawl, cruise, or walk. He was also crossing his eyes (both of them intermittently) after 6mos so we were referred to a pediatric ophthalmologist where he was diagnosed with strabismus and he is also moderately to severely far sighted. He passed a hearing test with flying colors. He also favors his right side which is a big problem because handedness is not normally determined that early (I've read after 1 or 2 years old). I'm not going to say that your child has CP because I"m not a doctor and I don't know, but I can answer your question in that yes, my child has some similar things happening.
Good luck with the pedi neuro appt. Make sure you write down when your LO has met milestones. That was one thing they asked in our appointment. I happened to have brought it with me but wish someone had told me beforehand they'd be asking about it!
I have a 1 month old that is at high risk for some of these types of issues due to brain damage suffered before birth due to lack of oxygen. This board has been really great for venting and support - there are a lot of wonderful ladies on here.
Good luck at the neurologist. Keep us posted on your LO.
My son is very similar to Iowagirl's. He has not been diagnosed with CP, but he is 11 months, can only tripod sit for a few seconds at a time, and does not crawl, cruise or walk. He is also farsighted and hears quite well. He also favors his right side a little bit, because of having torticollis as a newborn. This has gotten a lot better through therapy, though. I asked about CP, and his physiatrist said that some people might call it "hypotonic CP" but that that is not "true CP".
So for now my little guy just has "hypotonia". He happens to also have the torticollis, which he is almost recovered from, plagiocephaly, which he is also recovered from to the extent that a helmet can help, and epilepsy, which is controlled with medication. Hypotonia is neurologically based, so there is probably some connection between the seizures he had and the hypotonia, but that is all we know.
It's frustrating not to have a Dx beyond "hypotonia" because we really don't know what to expect, but we are doing PT and OT and he is making progress slowly. Everyone says as long as he is making progress, that's a good thing.
Good luck-- let us know how it goes, and try not to go Google-crazy. Nothing I ever find makes me feel better. Hugs to you!
Thank you all so much for your replies. It's helpful to have people who have been through similar situations. I have not googled, which is a good thing. I'm an oncology nurse, so I always tell my patients the same thing.
I will definitely be visiting this board more often and I will keep you all updated on our progress. I'm looking forward to next week when she will be having some of her testing.
Thanks!!
I don't want to scare you, either; but it is VITAL that you discuss, in detail about the favoring of hands that you are seeing, and if you notice fisting, or weakness, or stiffness in the hand/arm that is not being used as often.
I totally agree with pp's about taking notes. Be as prepared as you can. Having everything written down (even if things don't seem to relate to each other) is so important to make sure that you don't miss anything, as it can be kind of stressful sitting at appointments, trying to remember everything.
Good luck