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A nestie needs our help!

naclh2otaffynaclh2otaffy member
in Austin Babies

For those who don't know, DeltaDee's daughter, Reagan, has Rett Syndrome, a neurological disorder in the autism spectrum affecting mainly girls.  The girls start out appearing healthy and then somewhere between 6 months and two years old they start to exhibit symptoms and begin to lose skills.  Many lose the ability to walk.  Rett Syndrome can be fatal.

I can only imagine what DeltaDee goes through on a daily basis.  Let's help her out!  She's heading up a Stroll-a-thon on September 18th at 9 AM at Walter Long Park to raise money for Rett research.  Some of us have formed a team to walk - please either join us on the team to walk that morning or donate to one of our pages.

My page is at: https://www.firstgiving.com/rallying4reagan

The team page is at https://www.firstgiving.com/process/teamarea/default.asp?did=37872&TeamId=111771&EventId=85500

Reagan's blog is at https://reagan-haley.blogspot.com/

If you need help setting up a page or donating, feel free to let me (or one of the other team members know).

And if you need one more reason to donate, Rett Syndrome is one of the few autism spectrum disorders that is tied to an identifiable chromosomal cause. If we can find a cure for Rett Syndrome, it could unlock the key to finding a cure for the other disorders!

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Re: A nestie needs our help!

  • molliedbmolliedb
    so glad you posted about it- we are planning to be there!  i will be photographing the event and just want to support their family.  they are AMAZING and it would be awesome if they could not only have a successful event for Rett research but also just feel really loved by everyone who made an effort to come out and support them.
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  • OrangeFeltOrangeFelt member
    I wish I could be there, but I'm going back to Austin a week after this. DRATS!  I just donated to your page so I can be there in spirit instead. :)
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  • nanannnanann
    Thanks so much for pointing out the webpages -- definitely planning on attending!
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  • Temp13436125005166Temp13436125005166

    Thanks Taffy and Mollie, you guys said it so much better than I could.  I'm on the team too and want to do everything I can to help out Deltadee and raise money to find a cure for Rett Syndrome! 

    I hope we can show her some great nestie support!

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  • DeltadeeDeltadee

    Thank you for all the support and for spreading the word.  Raising awareness of Rett Syndrome is just as important to me as raising donations.  

    I would like to add that this event is going to be a fun day for the family!  In addition to the one mile walk/stroll in the park, there will be an inflatable bouncer, face painters, concession stand, silent auction, a DJ, a wonderful nestie photographer (thanks Mollie!) and Kevin Black (as in Clint's brother) will also be doing a live performance to close out the event. 

    I would love to see you all there! 

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  • cookie1and2cookie1and2
    I will be there and will offer as much support as I can.
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  • AustinAggieAustinAggie
    We will be there and are working on spreading the word.
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  • mcurbanmcurban member

    Thanks for posting- I will try to make it w/ my family, but I will definitely make a donation.

     

    Delta- is it a new round of voting for the Pepsi thing?

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  • elizabethcaroleelizabethcarole

    Do you (Delta or naclh2otaffy) mind if I post a link to the donation page on my FB? Most of my friends are social workers and would love the opportunity to give/spread awareness about Rett Syndrome.

     Just thought I'd ask before. Smile

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  • naclh2otaffynaclh2otaffy member
    imageelizabethcarole:

    Do you (Delta or naclh2otaffy) mind if I post a link to the donation page on my FB? Most of my friends are social workers and would love the opportunity to give/spread awareness about Rett Syndrome.

     Just thought I'd ask before. Smile

    I'm sure it's fine with both of us to post the links.  The more people that know, the better!

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  • TXAggieBride06TXAggieBride06
    imageMichelle&Russ:

    Thanks Taffy and Mollie, you guys said it so much better than I could.  I'm on the team too and want to do everything I can to help out Deltadee and raise money to find a cure for Rett Syndrome! 

    I hope we can show her some great nestie support!

    Ditto!

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