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anyone who had a "floppy" baby...

lboerslboers member
in Special Needs
how much fetal movement did you have? i am still waiting on amnio results (they said they are shooting for friday!) and i know that one of the more common symptoms of babies with the disease we're testing for is lack of muscle tone or "floppiness". i am trying to keep my hopes up because i have so much strong fetal movement. at least i THINK i do. this is my first pregnancy so i really have no basis for comparison. thanks again!
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Re: anyone who had a "floppy" baby...

  • mskolmanmskolman member

    I don't think you can really tell muscle tone by fetal movements. My little guy had super strong fetal movements in utero and it turns out he has low tone. When we brought him home at 3 1/2 months old, he was definitely a floppy baby. He couldn't even hold his head up. Now, much of that was probably because he was sedated, in surgery, and laying flat in a bed for most of the first 3 1/2 months. He also has 22q deletion syndrome which can add to the low tone. We have been working hard to get him stronger and he is definitely behind, but making good gains.

    I don't mean to be a downer for you and your situation could be totally different, but I thought I would share.  

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  • am369am369
    I don't believe fetal movement has anything to do with tone.  DS had weaker fetal movement, never a crazy mover and he has HIGH tone.
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  • CrazycrustaceanCrazycrustacean

    I am in the opposite camp. Sean moved constantly. If you ask me he never slept inutero. So far his muscle tone is great by all accounts from the pedi and his jaw muscles seem to be ok.  He has down's & tof. 

    Meredith was generally less active inside & outside the belly, but her tone was fine too (typically developing). 

     

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  • FalioleyFalioley member
    It's different because everyone is built differently and so the baby sits differently, etc. Dean definitely moved way less than my son Cole did in utero. That said, there were times when he moved plenty. At the end, I developed polyhydramnios (excessive amniotic fluid) and then I could barely feel him move just because there was so much fluid. People who touched my belly at 35 weeks pregnant could barely even feel a baby in there. It was that bad. Anyway, there it is.
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  • Calypso312Calypso312
    What are you testing for? My daughter was normal in utero and for the first 3 days of life and then she became floppy. But that is the nature of her disease. If you're looking for something like what DD has, you may not be able to tell right now just by movement.
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  • jptimestwojptimestwo
    My son has very low tone...and he was crazy inutero.  I don't think there is any correlation...
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  • lboerslboers member
    thanks everyone. testing has confirmed already that she has myotonic dystrophy but we are waiting to find out her number of mutated gene repeats to determine whether it is the congenital form or not.  i guess i was just trying to find a little hope that maybe she didn't have the congenital form because of the fact that she does move so much and so strongly. lack of fetal movement is a sign that it is congenital. i still have hope of course but i didn't have any basis for comparison in the fetal movement department.
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  • lboerslboers member

    ALSO:

    i too have excessive amniotic fluid (another sign that she has congenital mytonic dystrophy, unfortunately) and an anterior placenta so i've always been told not to expect to feel much movement. the fact that i can feel her so well through all of that is reassuring (even if it's false hope). oh well, we will find out soon enough i guess!

     

     

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  • KMom14KMom14
    My son was super active inutero, with really strong kicks.  He has mild low tone on the outside, though he's still really strong.  They say his strength helps him overcome his low tone, if that makes sense.  I'm not sure there is a corelation though.
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  • Carol*BradyCarol*Brady
    My low tone baby(DD#3) was very quiet in utero & much less active than my other 2.  I worried about her a lot because I barely ever felt her move.  When the Doctor lifted her right after birth I actually noticed that she seemed floppy.  She was not diagnosed officially w/ low tone until about 8mo...but she was meeting all milestones until it came to standing/cruising/walking.
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