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NBR~ Multiple Sclerosis~Send me good vibes!

lmpdjclmpdjc member
in Babies: 0 - 3 Months

I was diagnosed 2 years ago.  I've only had the one exacerbation that got me the diagnosis and 10 days in the hospital on IV steroids.  (Hello 30lb weight gain!) My neuro informed me that 3-6 months PP is high risk for an exacerbation.  Today when I woke up my legs (especially my left leg) felt like jello, 1/2 of my face and both of my hands were numb.  The symptoms have not gone away through out the day.  My left leg is also weak and  I've had a hard time getting around today.

Please send positive thoughts my way.  I hope this will just be temporary and won't get any worse.  I'm supposed to go back to work Friday...should be interesting, to say the least.

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Re: NBR~ Multiple Sclerosis~Send me good vibes!

  • LittleMissParisLittleMissParis member
    I'm sorry to hear you're going through this.  Lots of T&P your way.
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  • SoCaliAliSoCaliAli member
    You are definitely in my thoughts!
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  • LaurenVWLaurenVW member
    My SIL was recently diagnosed.  You'll be in my thoughts.  Sending recovery dust your way. 
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  • amykins1283amykins1283 member

    You are definitely in my thoughts!  MS runs in my DH's family so I've seen it's effects first hand. 

    I also have an inflammatory disease (ulcerative colitis).  It went into remission when I was pregnant and so far hasn't returned but I am just waiting for the day I wake up sick again.  Ugh.  

    Hope things get better for you!


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  • lmpdjclmpdjc member
    imageamykins1283:

    It went into remission when I was pregnant and so far hasn't returned but I am just waiting for the day I wake up sick again.  Ugh.   

    Same thing with my MS.  I felt better (MS symptom wise) during my pregnancy then I have felt since being diagnosed.  Maybe we should just stay KU all of the time?  I kid, I kid, but it sure felt great to feel "normal" for 9 months, I practically forgot I had MS

    I hope you never wake up sick again!

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  • sarahlouise11sarahlouise11
    I am a registerd dietitian and am doing research right now on Gluten and Dairy free diets and MS... so far the research is looking promising and I know many people close to me with MS who since going gluten and dairy free have had no symptoms or disease progression (success proven by MRIs iwth no disease progression!!)  For you and your baby's sake...I can only recommend you try a completely gluten/dairy free diet- I promise it is not as hard as it seems- we are gluten/dairy free in our house and will raise our DS this way- once you get the hang of it it is really easy- plenty of foods out there to eat.  But regardless...I will be sending you lots of good thoughts.
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  • lmpdjclmpdjc member

    imagesarahlouise11:
    I am a registerd dietitian and am doing research right now on Gluten and Dairy free diets and MS... so far the research is looking promising and I know many people close to me with MS who since going gluten and dairy free have had no symptoms or disease progression (success proven by MRIs iwth no disease progression!!)  For you and your baby's sake...I can only recommend you try a completely gluten/dairy free diet- I promise it is not as hard as it seems- we are gluten/dairy free in our house and will raise our DS this way- once you get the hang of it it is really easy- plenty of foods out there to eat.  But regardless...I will be sending you lots of good thoughts.

    I haven't heard of this, but will be asking my neuro about it.  Thanks for the advice.

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  • sarahlouise11sarahlouise11
    As of right now most neurologists (unless you have one who is open to alternative treatments) will not give it much credit as the studies are still smaller scale, but a large group of MDs in my area (in Minnesota) are backing this connection and believe that diet control is the key to MS treament....Neurologists legally cannot back anything that has  not been credited, but I know many MDs here recommending it to pts with MS (including one of my family members) and through my research I am following their disease progression and have seen amazing results- I've seen people regain walking ability, I have seen people who have had active disease states for 10 years have a complete stop to their disease for 4-6 years of following this diet (with no other changes)....so I would encourage you to look into it beyond what one neurologist my say.  If you google, look for research done by Dr. Loren Cordain- a professor at Colorado State University, or google and read "My fight against multiple sclerosis" by Roger MacDougall.
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