Last month my son (3.5 months) had a PT evaluation through EI (he has Down syndrome). At the evaluation all of his skills were age appropriate and he's been meeting his milestones on time so far, even though he does have mild/moderate low tone in his trunk. The PT said he didn't need services because he's been on track so far.
Well fast forward to yesterday, we had our first meeting with my son's geneticist. She was doing his physical exam and asked when we'd be getting our eval from EI. I told her the PT said he didn't need servies and the geneticist was like, "Um, he definitely should have qualified for services because of his low tone, regardless of whether he is age-appropriate or not." Now I feel awful that my son has missed out on therapy that he should be receiving because I was too naive to question the PT! (I'm just starting to realize that what doctors tell me isn't always "accurate")
So here's my problem - we are moving in 2 weeks out of state, where I will definitely be having Ty re-evaluated and hopefully will start PT there. In the meantime, does anyone have any exercises or good websites to recommend with exercies that I can be doing with my son (besides basic tummy time) to work on the tone in his trunk? I do the best I can with him, but I can't help but feel that I'm not doing nearly enough! Thanks so much!