Here's an update on Madi-

brittneycc1982 · June 2010

I have no idea who I have told what, so forgive me if I repeat things. I am soooo mentally exhausted I don't even know how I am going to take care of Syd tonight. Anyhow,..

She is doing good! The surgeon was in this mornng and is really happy with the way everything went. He was able to get the entire tumor out. She is still VERY sore and out of it, but answers questions when asked, holds our hands, has been eating and drinking lots today. The part of her brain that was worked on has a lot to do with balance (obviously) and so she is having a hard time moving herself around. She had lots of practice today with grabbing pieces of food and feeding herself. She doesn't move her body much though. They finally took her off the sedative so she was awake most of the day. She didn't want to do much though, just watched movies and cuddled. It's REALLY hard to see her like that. I can't even imagine how she is feeling. Probably scared, upset, stressed, icky from meds, etc. They controlling her pain with morphine and something else (maybe vicodin?). At some point tonight they want her to sit up and sort of dangle her legs off the bed. I held her a couple times and she didn't like it because it hurt, so I don't know how the sitting will go. It has to happen though, so she can heal faster.

Hopefully in the morning they will remove the drain from her head. I think that bothers her because it kinda of pulls when she moves around. Once that is gone, that means her body is obsorbing the fluid and that's a good recovering sign!

She has had a fever off and on, but again, that part of the brain controls body temp regulating so it's normal... but still scares me, and makes her uncomfortable.

For tomorrow, I would like to see her sit unassisted and get her washed up. She has the iodine stain all over her face and neck, and this gross glue stuff that they used to slick her hair out of the way. I also want her to play with some toys, maybe take a wagon ride around the picu.

It's REALLY starting to sink in now that my daughter just had a brain tumor removed. It's a VERY hard thing to grasp when you are in the situation. Today I told a stranger and it was sooo weird saying, "my daughter had a brain tumor removed on Wednesday."

Hmmm, what else? Oh, no word on whether it's cancerous or not yet. We will find out Monday.

K, going to make me and Syd some REAL food. If I eat something out of a package one more time this week I might puke. lol

roseroseroseroserose · June 2010

Thanks for keeping us posted...I know you have a billion other things on your mind.

I am so so so thrilled that Madi is doing so well. I will be praying for those results on Monday. I have no doubt that God has heard our prayers.

marrieddddd · June 2010

I am so sorry that you are going through this-- you are in my thoughts. I wasn't able to post yesterday but I kept checking back to see if there was any more news. My FIL recently had a brain tumor removed so I understand part of the situation but I can't imagine how hard it would be to go through this with a child. I really admire your strength and am sending good thoughts for a fast recovery.

mrs_kelly1014 · June 2010

I know that you don't know me (I post on BOTB/12-24) but MysteriousWife posted on BOTB asking for prayers for your sweet daughter earlier this week.

I just want to let you know that I have been praying for Madi and your entire family this week.

I see that you are in Peoria. We live in North Phoenix and recently moved from Glendale. My DS was in the PICU at Phoenix Children's last month (I'm assuming that is where you are as well) and it is such a scary place. I ate quite a few bags of Goldfish and applesauce from the PICU kithen area in our short stay and I can't imagine staying there for any longer. On a lighter note - try the breakfast egg-mcmuffin style sandwich that they cook up on the grill in the morning. It's the best one I've ever had.

ETA: Also, if you need anything, please, please, please send me an email at themagicofmama at gmail dot com. I am local and would absolutely be willing to help/bring you something if needed!

Mrs.Hubbard · June 2010

Britt, I'm really glad she is doing well. It is so nice that you keep us up to date when you are dealing with so much. I keep praying for you, and really hope one day this will just be something you look back at being proud of how strong you, Madi and really your whole family are. Oh, and I wish I was close and could cook for you so you would have one less thing to worry about! Big Smile

brittneycc1982 · June 2010

mrs_kelly1014:

I know that you don't know me (I post on BOTB/12-24) but MysteriousWife posted on BOTB asking for prayers for your sweet daughter earlier this week.

I just want to let you know that I have been praying for Madi and your entire family this week.

I see that you are in Peoria. We live in North Phoenix and recently moved from Glendale. My DS was in the PICU at Phoenix Children's last month (I'm assuming that is where you are as well) and it is such a scary place. I ate quite a few bags of Goldfish and applesauce from the PICU kithen area in our short stay and I can't imagine staying there for any longer. On a lighter note - try the breakfast egg-mcmuffin style sandwich that they cook up on the grill in the morning. It's the best one I've ever had.

ETA: Also, if you need anything, please, please, please send me an email at themagicofmama at gmail dot com. I am local and would absolutely be willing to help/bring you something if needed!

Aww, thanks so much! Sorry you had to be there! Glad to see there's another AZ lady, there arent many.

kada626 · June 2010

Thanks for the update. It sounds like she is doing what she is suppose to so far. I hope she does well with the sitting up but I'm sure that is going to be hard. You guys must be exhausted esp talking care of the baby too. I'll pray that we hear good news on monday. Keep on getting better Madi!!

kit443 · June 2010

So glad to hear that she is improving. Your entire family has been in my T&P. I hope that she continues to get better and is back to her normal self soon.

gisellems · June 2010

i'm so glad to hear she is recovering little by little! you are in our T&P.. you are a very strong mom! and you have an amazing little girl, she is brave like her mommy!!

abpdjs · June 2010

Britt- thank you so much for updating, i know your head is spinning with so many other things. I am so happy to hear she is doing well and is continuing to recover. I will continue to pray for her recovery and fabulous news on Monday.....(((((big hugs))))

Amie

Dani123 · June 2010

You know we love you and are praying everyday! You are such a strong, brave Mommy and Madi is just following suit

XOXOXOXOXOX

Now you guys will REALLY need that Disney trip

brittneycc1982 · June 2010

It's not a problem to update. You guys have bee so supportive that I owe it to you. It helps to sort of write everything down at the end of the day too. I should probably print these out and save them!

abpdjs · June 2010

brittneycc1982:
It's not a problem to update. You guys have bee so supportive that I owe it to you. It helps to sort of write everything down at the end of the day too. I should probably print these out and save them!

yes yes!!! once you and Madi get past this it will be awesome and give you something to look back on and show her. through any trials and tribulations in her life you can pull these memories out and remind her of how brave and strong she is deep within her soul. she is powerful mama!!!!

HawaiiBrideGrm · June 2010

Everyones said everything important so I'l just say YAY!! We are still praying hard for those BENIGN results on Monday!! Keep your chin up;)

KUJayhawkBride · June 2010

I just wanna bring you guys a GOOD wholesome meal

love,

mama E

brightning · June 2010

That must be so hard to see her like that! I hope you get good news on Monday and can start to see glimmers of the real Madi under all the medicine and wires really soon.

mrshutch · June 2010

Oh, Brittney, I so could not believe that this happened. I hadn't been on in a few days and was catching up last night. And then I couldn't even send well wishes b/c the silly site wasn't working properly. I am so, so glad she's doing well. I can't imagine how scary it is to see your child like this, but kids are so darn resilient. She'll be running around before you know it Big Smile

Lots of thoughts & prayers for all of you. And I wish I could send some good meals your way!

bridesrighthand · June 2010

thank you sooooooo much for keeping us posted. I keep wanting to ask you, but I know you have enough on your plate and are probably asking a ton of questions. I'm so happy she's doing so well and I'm still praying for a quick recovery!

Jelliebean1982 · June 2010

We are all praying for good results on Monday and a speedy recovery for Madi. Thanks for the update!

zoe_cat · June 2010

I'm so glad to hear Madi seems to be recovering well. I've definitely been thinking about you and your family and wish you the very best.

Rubygirl · June 2010

Just found this board a few days ago and read your amazing story. Prayers are with Madi for a quick recovery (and good news on Monday!).

dnagal · June 2010

Thank you so much for the update! You are so blessed! (I know it may not feel like it) But how amazing is this, when you think about it-your sweet girl has just had brain surgery and is now there with you eating and talking. The rest of her recovery will come with time, also quickly I suspect. I'm certain it's so hard to see her uncomfortable, in pain or sedated, but each of her complaints means that she's feeling and reacting to her environment and getting better every minute! Hope you enjoyed your meal at home, and know that we are all here rooting for you all!

moroccojade · June 2010

Thanks so much for the update. Praying praying praying that Monday's results are perfect.

femmeftle9 · June 2010

I really haven't been on the Bump much as of late, and had no idea Madi had a brain tumor I am so sorry.. but am glad the doctor was able to remove the entire mass. I'm praying for a quick recovery for your precious DD!!!

acppa · June 2010

Wow. Thanks for keeping us updated.

I keep thinking about your family. I'll be praying for good results on Monday.

Halo79RN · June 2010

go Madi! I'm so glad she's doing well. I hope you are as well. Thanks for keeping us updated!

PaigeC1981 · June 2010

So happy to see this update! Still praying for you & sweet Madi!!!

j_hope · June 2010

Thanks for the update Britt. I will continue to pray for Madi's recovery and her overall healing process. The strength you and your little girl have is amazing! That and I hope you were able to eat an amazing dinner last night...you deserve it after all you've been through

)

Erin&Rod · June 2010

You are a very strong momma and Madi sounds like a very strong little girl. I am praying that you get good news about the tumor.

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