We had our big appt yesterday and got some very clear answers that DD does def. need her surgery. Basically, there are two bones, squishing into her spinal cord and the degree to which they're pushing in is really dangerous, but also has a high-risk for operating on, because its in a specific hard to reach area at the top of the spinal cord, which controls all the important stuff. We're waiting to hear back after he consults with some other dr.'s to tell us his plan for HOW he wants to do the surgery.
I actually feel relieved now that we have a clear idea of what we need to do. No promises I'll feel that way on surgery day. But the back and forth of wondering what to do wasn't good for anyone.