Big appt today

Very long story short we have a huge appointment today to followup on an issue that is literally life or death for DD. Do we get a surgery that's only been done a few times and won't specifically do anything good, but might prevent something bad, but could a)kill b)paralyze c) make her stop breathing? Or do we let her live her life with a condition that should have paralyzed her, but she's had since birth and is showing no signs of her nerves shorting out?

My stomach has been in knots the last several weeks since we found out about this, we had appts right away, but its taken a while for the 2nd opinion appt (honestly because for two weeks I couldn't pick up the phone to make it). Now that its here, I can't get this feeling out of my stomach that I seriously. Need. To. Throw. Up.

Blah.

Please send some prayers out for our sweet little girl. She so doesn't need this on top of everything else that's going on. 

Sorry. I'm rambling. I hope that makes sense.