trisomy 13 diagnosis...

JP514 · May 2010

Yesterday we got the horrible news that our baby has trisomy 13...i am only 12 weeks and basically was told that in my case likely the baby will not survive much longer. I was given the option of having a D & C this week but I am really struggling with the decision.

anyone experience this or something similar?

RaineFaye · May 2010

I cannot give you any advice from personal experience, but I wanted to tell you how very sorry I am for your loss. Huge ((hugs)).

elizabeth&james · May 2010

I'm so sorry you have to go thru this. Sending support and a hug. We're here for you.

millejj1 · May 2010

If you scroll down a few posts to the post Elijah is an angel now that is the story of LauralovesJon who's son was diagnosed with trisomy 13. She may be able to help you.

CashewsMommy · May 2010

I am so sorry that you have to go through this. (((hugs)))

laura&dan05 · May 2010

I'm so sorry that you got such devastating news about your sweet baby. In January we learned out baby boy had trisomy 18 (along with other abnormalities). About a week after the diagnosis we went to meet with a high risk doctor to discuss our options (carrying the baby as far along as possible or terminating the pg) and at that appointment learned our sweet baby had died. It was very overwhelming having the diagnosis and loss happen so quickly one right after the other. I had a d&e the following day.

My only advice is take your time, talk to as many doctors as you feel necessary, and make the decision that is best for you and your DH. ((HUGS))

Sunflower730 · May 2010

I am sorry you have to deal with this.

Please use us for support. (HUGS)

CounselorGirl · May 2010

I am so sorry you are having to go through this. ((hugs))

damabo80 · May 2010

I am so sorry that you are faced with making a choice between two options that are both not going to end well. No parents of a wanted baby should ever be forced to make a decision like that.

At an ultrasound, we were told that our baby had anencephaly, which is a fatal NTD. After weighing our two options, and all of the pros and cons which go into each of those options, we decided to terminate the pregnany at 11.5 weeks.

There is no right answer....instead there is only the "better" answer for you, whatever that may be. Please feel free to PM if you would like to chat more.

My heart goes out to you.

shanna82 · May 2010

I haven't experienced anything like it. I agree with the PP, I think reading some of the blogs of the women that have gone through it can help. I'd stay away from google searches...they have such horrible info on the internet sometimes.

I just wanted to say I'm so sorry for what you are going through.

PrncssShan03 · May 2010

I'm so sorry to hear about this. Hugs to you.

I was nannying for a family a couple years ago who was excited to find out they were expecting a surprise baby #3. The pregnancy went on as normal, nothing was discovered. She went into labor a few weeks early and that's when they found out Zachary had Trisomy 13. He lived a little over 2 weeks if I remember correctly. I can speak personally and say that while I never met Zachary outside the womb (I was on a seperate business trip) his life touched mine and many others. Ultimately the choice is entirely up to you. Don't let anyone tell you any different and don't allow people to guilt you into something you do or don't want to do.

This is a HUGE decision and one that takes time. I found numerous resources for Trisomy 13 on the web when Zachary was diagnosed. I'm sure you can reach out to those families and find Trisomy 13 support groups online.

Zachary's blog is: https://zacharyjamestate.blogspot.com/

PrncssShan03 · May 2010

Here's another great website to look at, when you're ready

https://www.livingwithtrisomy13.org/

mommyofgriffy · May 2010

I'm so very sorry. ((HUGS))

Jessicaanne_1@yahoo.com · May 2010

I'm so sorry. ((hugs))

LauraLovesJon · May 2010

First let me say I'm so sorry to hear this, I know your pain and how hard it is to know what to do. We found out that Elijah had Trisomy 13 around the same time. We had no idea what to do, choosing to carry to term took a long time for us to decide. We basically waited until my 20 week ultrasound to see if could make it that long, then we based our decision largely by what we learned from the ultrasound. Eli had several defects, but the doctor told us if he made it to term and through labor he would not be in any pain when he was born, which is one of the biggest factors we took into consideration. He stopped growing around 33 weeks and I was induced at 37 weeks, they didn't think he would make it through labor, but he did and lived for twelve hours. Those were the most amazing yet terrifying twelve hours of my life, but spending that time with him is something that I felt I needed to do. I can honestly say that I know not everyone can go through what we did, I think it was the best decision for us, but it was extremely difficult. Whatever choice you make will be a very difficult one and there is no right or wrong answer in situations like ours. You can read my blog to kind of see what I went through throughout the entire experience, and feel free to PM me anytime. It was so hard for me to find people who knew what I was going through, so if you ever need to talk, don't hesitate to contact me. I wish I could take your pain away right now, it makes me sick knowing that someone else has to go through this. Whatever decision you make will be the best one for your family and don't let anyone make you feel differently. Know that I am thinking of you and your family and sending you lots of hugs.

My blog:

https://www.embracingelijah.com/

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