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Can I ask a Q for those with lo's effected by ASD?

starlingrosestarlingrose member
in Special Needs
Hi there, I am just wondering if you can help me out with some info. I had an ASD that was corrected when I was 18. It was severe and due to my dr ignoring obvious signs it went untreated until then. About 4 other ppl in my family have it/have had it fixed.

My Q is, when did you get your Dx & what tests were done to find it? My son had a EKG at 3months and my doctor said it looked okay and he wouldnt need more testing until 2-3yro. I am nervous that it will get overlooked or that 2-3yrs is too long to wait in case he does have it. WDYT?

Sorry to butt in on your board, I appreciate your input. Thanks
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Re: Can I ask a Q for those with lo's effected by ASD?

  • breezy0629breezy0629 member
    I'm not familiar with this abbreviation (ASD)..... ?
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  • autumngirlautumngirl
    I think she means

    Atrial Septal Defect (ASD)

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  • JustinloveJustinlove member

    DD has a VSD so I can speak to her experience.  It is classified as a 3mm (VERY small).  It was discovered through a fetal echo (following a suspician on a growth ultrasound around 32 weeks).  She had her first EKG and Echocardiogram at 1 month old.  She had another EKG at 3 months, 6 months and 12 months.  She also had another echo at 12 months.  Since it is showing no signs of growth  (in fact, *might* be getting a little smaller), she does not go back until 24 months at which point she will have another EKG and echo.

    Her pediatrician is well aware of it and listens to it at every check up as well (since it is so small, it is very loud apparently).  I know that if he felt it was changing, he would send us to the cardiologist. 

    If you aren't comfortable waiting, I would get a second opinion.  It can't hurt and will put your mind at ease.

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  • hopankahopanka member
    Oh wow - I was like....where exactly do you go to fix autism at 18 years old?? Now I get it...ok.
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  • CrazycrustaceanCrazycrustacean

    DS was just diagnosed with tetralogy of fallot inutero. It was discovered during a level 2 u/s and confirmed with a fetal echo. 

    If you're worried, I'd ask for a referral to a pedi cardiologist (if you need one for ins), a recommendation to someone or just go on your own if you don't need a referral.

    The cardiologist will do an echo on your lo's heart and will give you a definitive answer.  

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  • duchess0727duchess0727

    My daughter has an ASD and it causes a very obvious heart murmur (as I believe all ASDs do).  I think if you simply ask your peditrician to listen for a heart murmur and if they hear one, see a cardiologist.

    My daughter's was diagnosed after birth by a cardiologist that she sees for her Ebstein's anomaly.  They noticed it on an echocardiogram and the heart murmur is very obvious.  It is approx 5mm and needs to be closed at some point but probably not until she is 3-4 years old. 

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