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Miscarriage/Pregnancy Loss
Not a M/C but still heartbreaking
Just before Christmas 2009 we went for a routine ultrasound for my 18 weeks. We were sent the same day to a specialist, to discuss that our lil one have an ompholocele. (where the abdomen isnt fully formed and there is a sack containing some organs on the outside). This was shocking and my husband and I did research. There are huge risks and possible complications that can come with that. In January the specialist told us we should get an amnio done so they can check out the risks. We couldnt affor the test at the time, so we waited. Middle of February I went back and had another ultrasound done. This time they found out that our little girl (we found out) has a heart defect also. Called a Complete A-V Canal defect. Where instead of having 4 chambers in her heart, she only has 2. Instead of having 2 valves, both chambers share one. This caused a red flag for us. And to add to all of this we also found out she only has a 2 vessel cord instead of 3. So she wont be very big at birth.The next week I had an Amnio done. By this time im 27 weeks pregnant. They call us up the following Monday to have us in for the results. Our lil girl has a Chromisome disorder called Trisomy 18. The outcome is almost certain. Death soon after birth. We could have days, weeks, possibly months to spend with our litle girl before she leaves us. Because I was 27 weeks when we found out, termanation wasnt even an option. In the state of Florida you have to be under 24 weeks along. Not that we would ever termanate. Now Im almost 30 weeks along, they are still doing routine ultrasounds to check her growth. We dont know whats ahead in our future or hers, we've been seeing a genetics counsler to prepare us for the bumpy road that will follow. Im Due June 5th 2010 , but since Ive already had a C-Section with our son Its probably gonna be a planned C-Section again in the middle of May. Wish us luck.
N. Rohman
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Re: Not a M/C but still heartbreaking
Rylan 1/27/2011, 2:42 pm, 5lbs 12oz, 18.5 inches long
Ayla 10/02/2013, 10:14 am, 6lbs 14oz, 19.25 inches long
Missed Miscarriage 6w3d 3/02/2010
I'll hold you in my heart until I hold you in heaven.
OH I am so sorry to hear this.
I am not sure if this is comforting or not, but I worked with a hospice that did pediatric care. We had a trisomy 18 case that we worked with right after birth until the baby's death. It was a lot of comfort to the family so you might want to look into if there is a hospice in the area that deals with peds. Our family was able to spend almost 2 weeks with their beautiful baby, so I hope that you will get some good time as well.
My sincerest condolences to you and your family as you go through this difficult time.
Harper Oksana, born on her due date, January 20, 2011, and the love of my life
This is for all the caterpillars that never became butterflies. And for all the butterflies that never felt the wind in their wings. And for all the hearts that had hopes and dreams of a wondrous flight together.
My god. That is just one of the most heartbreaking things I've ever read. I am so, so sorry. Just about the only consolation here is that you know what's coming and are able to prepare yourself as best you can.
You are definitely going to be in all of our thoughts and prayers. Please stay in touch here and keep us updated.
I'm so sorry, hun. I highly suggest checking out Angie and Todd's blog
https://audreycaroline.blogspot.com
I will be praying for and thinking of you
::hugs hugs:
I'm so very, very sorry for your pain and how heavy a load you've been given to bear. I too recommend reading Angie's blog linked above. It is heartbreaking, yet full of hope. Start with the January '08 posts.
I hope that you have friends and family to support you, and know that you have all of our thoughts and prayers here as well.
I am so so sorry you and your family have to go through this. I will most definetly keep you all in my thoughts and prayers.
You came to the right place for support ~ these ladies are the best comfort!
I am so sorry that you are going through this. Not to sound like a broken record, but I strongly agree with the PPs about Angie Smith's blog. They found out that their little girl wouldn't live long outside the womb. I had read it all before I found out that there was anything wrong with Olivia, so in those few days that we were in the hospital when we knew that she probably wouldn't make it, I went back to the posts that lead up to Audrey's birth, and the ones that talked about what they did to spend time with her in the hospital. If I hadn't read them, I wouldn't have been able to create such beautiful memories with Olivia in those few days that she was alive. If anything, hopefully it will give you strength. It's also comforting to me to read the posts that have followed her daughter's birth, because she is SO strong, and it gives me hope to see how far she's come, and that she's in the middle of a healthy pregnancy now.
I wish you the best of luck, and please know that all of us here would love to support you. This board is a great community. I wish I had more advice to offer, but I will definitely be thinking of you, and would love it if you could update us on everything.
click the button above to read my blog!
My blog: Midwest Chaos
Mommy to DS#1 7/1/04 and DS#2 6/15/07
M/C 2/16/10 at 9wks 5 days~ D&C 2/18/10
BFP#4 5/17/11 C/P.
BFP#5 11/30/12 Surprise! DS#3 born 7/29/13