A reminder to cherish every second with LO

SeaSoul · March 2010

An excerpt from laylagrace.org (I can only read this blog in small doses because I get so emotional). It really hit home with me...

Layla now spends most of her days sleeping. 30-45 minutes after she wakes up, she is ready to lay down and sleep again. Is this God?s way of preparing me for all the quiet time that is coming soon? The house is quiet. I am able to go through the motions of laundry, dishes, cooking and picking up without interruptions. But I WANT interruptions. I WANT Layla to be under my feet asking for cookies. I WANT to hear her playing with her toys. I WANT to take 45 minutes to unload the dishwasher because she keeps trying to help. For every time I uttered the words ?I just can?t get anything done with these kids under my feet all day? I am eternally regretful. The days that I looked forward to naptime so I could get a grocery list made, or finally fold all the piles of laundry?I regret those days too. If I could do it all again, I?d enjoy EVERY SINGLE WAKING MOMENT I had with her. I would never wish for her to sit still or take a nap or go to bed early. I would never look forward to the days when she could sit through an entire episode of Dora silently. I would treasure every second with her.

emiannie · March 2010

That broke my heart when I read it. This is such a sad story, but it really hits us all hard because our precious little ones are so close to her age. I can't imagine how they feel, but their blog makes me feel a teeny, tiny smidge of it.

charmcitygirl · March 2010

That family is breaking my heart!

mrsolsenk12 · March 2010

I have stayed away from that blog because I was not sure i could deal with what it said but after reading what you wrote, I had to go see it. It does remind you how short life is and how precious our LO's are.

bmf8140 · March 2010

Ugh. I can't imagine. Seriously. What a horrible thing for anyone to have to go through.

And I love what she has written. After yesterday's rough afternoon (Bennett didn't nap at all and was a bear!) I needed a reminder.

DavezWife · March 2010

;-(

I am VERY proud to say that when my kid asks me to play with her, or read her a book, etc. I stop what I'm doing and enjoy it with her. Not 100% of the time, but most every time. (I've always made it a point to do that, not just since reading about Layla. My parents always seemed so "busy" and dismissive, I don't want my kids to think of me like that.)

Christakim · March 2010

Ugh, my heart breaks for that family. So so so sad...

ejgballerina · March 2010

Wow, I just went to their blog and I just can't stop crying. My heart goes out to that family.

PhillySue · March 2010

I was reading the blog yesterday for the 1st time and was crying at my desk. I just could not read it anymore. NB is just an awful disease. My brother's friend lost her 2 1/2 to NB over a year ago and her story was so sad. I followed her story closely and was heart broken for her and now as a Mom I can not even imagine. I have another friend of a friend whose 2 year old was also just diagnosed with NB. Her story is so heartbreaking because she was a 24 week premie born at 1 1/2lbs who beat the odds and was a thriving, healthy 2 year old till this.

Katie is my world and I can not even imagine what these parents are going through.

SeaSoul · March 2010

DavezWife:

;-(

I am VERY proud to say that when my kid asks me to play with her, or read her a book, etc. I stop what I'm doing and enjoy it with her. Not 100% of the time, but most every time. (I've always made it a point to do that, not just since reading about Layla. My parents always seemed so "busy" and dismissive, I don't want my kids to think of me like that.)

You know, come to think of it, I do too. But I've certainly been in the position of wanting to unload the dishwasher without "help," and looking forward to nap-time...

angela_lynn80 · March 2010

DavezWife:

;-(

I am VERY proud to say that when my kid asks me to play with her, or read her a book, etc. I stop what I'm doing and enjoy it with her. Not 100% of the time, but most every time. (I've always made it a point to do that, not just since reading about Layla. My parents always seemed so "busy" and dismissive, I don't want my kids to think of me like that.)

Davez - my goal is to be more like you!!! Right on, momma!

LuckyH · March 2010

It is so incredibly difficult to read her blog and twitter feed. I do though. That family needs all the prayers and support that they can get. Poor Layla is just suffering, and I'm confused at this point what to pray for. I guess just peace for all of them.

I can't even fathom how difficult this must be for them. Life is precious and our LOs are all miracles.

oct11bride03 · March 2010

That is such a sad story. I definitely hugged my baby a little harder last night after reading through the blog yesterday.

Carrie25 · March 2010

OMG...I finally read this blog. My sister's best friend's son, also an Aaron, has Stage IV Neuroblastoma. Nasty, nasty cancer. He's four and sounds like they are pretty much similiar. Wow, just wow. They are both in the battle of their lives. My heart and prayers go out to both of them.

laura&dan05 · March 2010

I read this post too and as soon as I finished reading it I WOKE dd up from her nap just so I could hold her.

It is such a good reminder that what matters is right in front of you. The dishes, laundry, and bills will all be there tomorrow but you never know what life may bring.

somethingchangd · March 2010

I can't even begin to imagine. That blog just kills me. Her dad's post on Sunday was just too much. No words.

I do hug my boy a little tighter (if that's possible) after reading it...

soccerwife · March 2010

laura&dan05:
It is such a good reminder that what matters is right in front of you. The dishes, laundry, and bills will all be there tomorrow but you never know what life may bring.

Exactly right - and Davez & Sea Soul...good for you for always stopping to play with/read with DC. I need to do the same.

My heart breaks for Layla and her family.

roaringrock · March 2010

I am SO upset over this little girl. I couldn't even read your post. TRAGIC!

Cajun_gal · March 2010

LuckyH:
It is so incredibly difficult to read her blog and twitter feed. I do though. That family needs all the prayers and support that they can get. Poor Layla is just suffering, and I'm confused at this point what to pray for. I guess just peace for all of them.

I can't even fathom how difficult this must be for them. Life is precious and our LOs are all miracles.

Ditto. Very well said, LuckyH.

travelbug · March 2010

It is heart breaking.

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