Newbie here... — The Bump
Preemies

Newbie here...

Hi all, I have been stalking the board for the past few days and decided to post since you all seem like such warm, supportive women!

My DS, Owen, was born on Feb. 5th at 35w, 3d due to acute polyhydramnios (excessive amniotic fluid - normal is around 15cm and I had 43 - off the charts)... He was 6lbs., 5oz. and 19 1/2 inches (quite the big guy for his GA!), but was born with severe RDS and ended up developing a pneumothorax on day two...  He went from CPAP to a respirator, to being transferred because our hospital just didn't have the facilities to handle his numerous issues.  He stopped breathing three times despite the respirator and that was why he was transferred...  They thought they detected neuro issues of an undetermined nature, but couldn't figure out what it was exactly.  About a week after he was born, when they were able to take him off the respirator and the chest tube was removed, he was transferred back to our local hospital where they did an MRI and EEG (we are still trying to get to the bottom of why the other facility didn't do a neuro consult), and right when my DH and I had allowed ourselves to let our emotional guard down and believe he might be just fine, we found out that Owen had a stroke in utero and he was seizing those first couple of days which was causing the complications  with the respiratory issues he already had.  We were absolutely crushed.  The Pediatric neurologist told us that it's in the left side of his brain in the motor skills area...  We won't know the full implications of the stroke until he's almost at his first birthday based on him hitting developmental milestones, but for now, he looks good.  He also automatically qualifies for EI through our state and will definitely get OT and PT services ASAP.

Owen spent fifteen days in the NICUs, and he came home on Saturday...  We are so lucky to have him home, and so petrified too.  He's not my first (I have a seventeen month-old DD as well), but this is......different.

I look forward to getting to know you and sharing any knowledge, advice, or support I can.  Thanks for reading my little guy's story...

 

Re: Newbie here...

  • Congratulations on your son! 
    Emma - March '08 Quinn - August '11
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  • congrats and welcome.
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  • Congratulations on your baby boy and welcome to the board!
  • Congrats on your son, Owen and welcome.  :)
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  • I am so very sorry about the complications.  It's so terrifying, but such a miracle at the same time.  These little munchkins tend to surprise us so don't get too ahead of yourself.

    Hang in there--we are all here for you!

  • Congratulations on your new little boy....and welcome!
  • oh wow, what an entrance story!  Congrats on your DS.  Also, the special needs board might be more helpful about his condition.
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  • Welcome. I'm glad Owen is home. You must have your hands full with two little ones. :) how exciting
  • Welcome, mama!  We are here for you!
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  • Congrats on your little boy and getting him home! Most of us have been through all that you mentioned so feel free to ask away!
    BFP #1 - Chemical Pregnancy ----BFP#2 - DD born at 32 weeks-----BFP #3 Spontaneous Identical Twin Boys lost due to Missed M/C - on 7/1/11----BFP #4 Baby girl lost due to Trisomy 22 on 1/6/12 PGAL and PAL Always Welcome! Image and video hosting by TinyPic
  • Congrats on your little boy!  Sounds like you had some scary moments.  Hopefully those are all behind you now. 
  • Congratulations on the birth of your son. Thank you for sharing your story.
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  • Congrats on your son and I'm so sorry that you didn't get the level of care you deserved. I'll be praying for him. Ask anything and everything - we're here to help support you!
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