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Newborn Screen help

bmstee03bmstee03 member
in Babies: 0 - 3 Months
My son was born last week and we just got his newborn screen back. He tested positive for cystic fibrosis. Has anyone received a false positive???
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Re: Newborn Screen help

  • Liss_37Liss_37 member

    I don't have any information for you but I just wanted to post and offer my support. I'm sure you're very worried and scared. Sorry you have to go through this. Sending T&P your way that it's a false positive!!

    *hugs*

    Me: 37
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    DS: 11-20-09

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  • CTri17CTri17 member
    Praying that it is a false positive for you!
    ~Christina S~ EST: 9/27/08        *May 2015 Jan. Signature Challenge-
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  • Breezie17Breezie17

    I have not heard about false positives on newborn screenings, but they did discover my daughter's congenital hypothyroidism on her screening.  In fact, after nuclear scans, they discovered she has no thyroid at all. 

    Will they do further testing to verify the results?  I hope all turns out well and it is a false positive!

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  • Breezie17Breezie17

    Just checked the Cystic Fibrosis Foundation site and found this information:

     What does the newborn screening test for CF reveal? Does a positive result mean that a baby has CF? 

    No, not necessarily. A newborn screening test is not a diagnostic test. In fact, only a fraction of babies with an initial positive CF newborn screening test ultimately are diagnosed with the disease. If an initial screen is positive, further tests are done to rule out or confirm a CF diagnosis.



    You can find more information here....

    https://www.cff.org/AboutCF/Testing/NewbornScreening/

     

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  • bmstee03bmstee03 member
    imageBreezie17:

    Just checked the Cystic Fibrosis Foundation site and found this information:

     What does the newborn screening test for CF reveal? Does a positive result mean that a baby has CF? 

    No, not necessarily. A newborn screening test is not a diagnostic test. In fact, only a fraction of babies with an initial positive CF newborn screening test ultimately are diagnosed with the disease. If an initial screen is positive, further tests are done to rule out or confirm a CF diagnosis.



    You can find more information here....

    https://www.cff.org/AboutCF/Testing/NewbornScreening/

     

    Thank you for the info. I will try not to freak out until we go get his testing done. I hope this is just a false positive.

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