rashes, eczema, 4th formula change & Allergist appt

mama.bear · January 2010

The Nutramigen has worked well for a few weeks but now Robby's eczema is out of control despite the religious application of Triamcinolone and Aquaphor. He also has other rashes (hives?) on his chest which look much different than the patches of eczema. When he's awake, Robby is scratching his forehead, eyes, cheeks...whatever he can reach. HE IS MISERABLE!!

At noon today Robby had his first bottle of Neocate. (If Nutramigen was liquid gold, this stuff is liquid diamonds and can not be purchased in stores)

While the Nutramigen is more easily digestible, it works well for babies with a milk protein Intolerence. It still has casein (sp?) in it and is milk based. We suspect Robby has a milk protein Allergy which explains why he is miserable.

I'm frustrated that, knowing our family history, our Pediatrician hasn't been more proactive with Robby's care. She has given us medication (steroids which I don't like using on baby skin!) to apply to his skin and suggested we see a Dermatologist. The skin irritation is a symptom of what is going on internally. We can treat his skin over, over and over again but, that is never getting to the root of the problem.

Our Allergist wants to see him at 3pm today. We feel thankful that we're on the right path. I want my happy baby back. If the results come back that Robby indeed has a milk protein allergy the doctor can write us a form of medical necessity to submit to our insurance. DH called our insurance and it looks like they will pay up to 80% of the cost of the new formula once we have met our deductible. (more good news!)

JenniferTCU · January 2010

I almost cried reading your post, Kari. I hope you find a good solution for your sweet, precious angel. I am so sad that he's having such a rough time. I know it breaks your heart.

pahokie · January 2010

Poor little guy! I hope the allergist helps get this figured out quickly.

carladillon · January 2010

Poor little man Crying

Good for you Mommy for keeping after this - keep going! Little Robby is lucky to have you in his corner. Good luck and let us know how the allergist appointment goes.

ml0904 · January 2010

Oh I completely understand and I know it is frsutrating. We have changed formula 4 times also and we are on the Nutrimagen also. DD does not have eczema but she spits up constantly, but on this formula, where ever it lands on her body breaks out so just today the pedi so go back to the normal formula and start with cereal.

I hope the allergist can help so he is not so miserable.

BarefootContess · January 2010

I am so sorry your little man is so miserable. Have you thought about switching to a new ped? I had one ped tell me my son had celiac and needed to have a biopsy of his small intestine. I switched to a more wholistic ped who had me try pro-biotics. Solved his GI problems in less than a week.

iluvtom · January 2010

Kari-- I am so sorry for Robby! I hope that he gets better soon..

YaraC · January 2010

Oh that poor baby. I can't imagine how hard it is for you to see him so miserable. I hope the allergist gets this figured out and that the new formula works wonders for him.

robynlesley · January 2010

Your poor little boy... awww... I feel for you all.

I'm glad the allergist will help and I'm thinking perhaps a new pediatrician is in order? Good luck with the Neocate and keep us up-to-date on Robby.

KD288 · January 2010

ooh the poor little guy! I am so sorry you and he has to go through this. I hope the dr this afternoon helps you out and the little man can recover fast!

fauxshelley · January 2010

Kari I am so sorry he is itchy and miserable. Poor little guy. Sad

BTW, I know the pics were of his skin irritations, but I just have to comment on how cute and chubby his cheeks are! I just want to gobble him up!

busybea · January 2010

oh no! poor little man - I'm glad you are persistant and he is on the way to feeling much, much better. Great job mommy!!!

stever · January 2010

Ouch! Ouch!! Ouch!!! I feel so bad for your little guy. I really hope the allergist can get things sorted out and figure out a way to treat him.

Peppernut · January 2010

Awwwww, poor Robbie! I hope the allergist saves the day!

aracely523 · January 2010

DD also has eczema and we've switched her formula 3 times. The pedi doesn't think it's the formula though. We also apply Traimcilone (sp?) (dr's prescription) and aquaphor. We've tried Mustela products, cetaphil, vaseline, eucerin, aveeno, etc. I hate that the cream prescribed is a steroid so we try not to put it on her everyday but then her skin gets itchy and she scratches herself all over her legs, chest and face. It's so frustrating. The Pedi hasn't recommended a dermatologist or an allergist but we're going to make an appt just don't know which we should do first. I hope your LO gets relief soon.

leffe1 · January 2010

Oh Kari, Hang in there. I hope you find some quick answers and solutions.

KristelRobin · January 2010

Kari, those pictures brought tears to my eyes. I'm so sorry. I really hope that the allergist will figure out what the heck is going on with Robby. I also agree with the others who said it might be time to think about a new pedi...