Hi I'm outside of Boston, but I got married in Wellfleet (old Knot screenname).
Where is your DD's hemihypertrophy? Ben's is in his leg. How old is your DD, and when did you notice it? Do you have a more specific diagnosis or just the hemihypertrophy? Ben also has Horner's syndrome in his eyes (one pupil doesn't dilate as much as the other one). So far, he doesn't have any developmental delays at all. He's been seen by a pedi neurologist who said he was doing perfectly on that front.
Thanks for the info. I don't know which doctor we are seeing yet. Still waiting for them to call me.