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2nd Trimester
LauraLovesJon
member
XP: Update on Eli (May be graphic)
LauraLovesJon
member
We had our big appointment today. I just got home from the hospital, we
had been there since noon. I was prepared for some bad news, but the
results weren't exactly what I was expecting. To our surprise, his
heart looks like it is functioning normally, may have a little murmur,
but nothing severe. His brain is separated into a left and right, but
there is nothing connecting the two, so he will not have normal brain
function. His kidney's are enlarged as well. It does appear that our
son won't look exactly like a normal baby either. They were unable to
see any eyes, just the eye sockets. He has a severe cleft palate, and
it looked like another hole in his face as well. He has six fingers on
each hand and six toes on each feet. It breaks my heart that I will not
be able to look into my son's eyes, or be able to breastfeed him. Right
now it looks as if we will induce whenever it becomes medically
necessary. If we choose to induce before 24 weeks it will not be
covered under insurance, but anytime after that it will. It is very
likely that Eli will not make it to term, and when I go into labor it
will be induced, this could be anytime between 24-37 weeks. I met with
a neonatal intensive care specialist who put together a team of doctors
and caregivers to help me from making a birth plan to planning the
funeral. It is going to be a tough tough road ahead of us, and even
though Eli is very sick and does not look normal, he is perfect in my
eyes. Thank you for all of your prayers and support, we need them now
more than ever.
Dylan Sophia 06.04.09 - Elijah Alexander 04.25.10 - 04.25.10 - Sullivan Thomas 09.06.11 - Calvin Douglas 08.06.13 - Baby GIRL Due 07.01.15!
This discussion has been closed.
Re: XP: Update on Eli (May be graphic)
RSVP Date: 2/28/2011
Beta #1: 268 (16dpo) ~ Progesterone 54 ~ Beta #2: 541 (18dpo)
My thoughts and prayers are with you in this difficult time. I hope that you can enjoy the time that you have together now. I have worked in a children's hospital and know that even with severe medical issues there is an incredible bond between parents and their children. He is lucky to be so loved. I wish you strength.
Little Eli is so lucky to have such loving parents. God bless you and Eli.
Hugs and T&P.
I can't even tell you how sorry I am, and I can not believe the incredibly mature and wonderfull way you are handling this. Eli is blessed to have parents to love him they way you two do.
God bless you, I'll be praying for you all.
+1
I'm so sorry, I can't even imagine.
BF help & support * My Charts
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