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Pregnant after a Loss
Update on baby girl's neck mass (long)
I talked to my OB yesterday because I wanted to know what the specialist's findings were--and the specialist thinks that she has a cervical termatoma--a very rare congenital neck tumor (most always benign). I researched it online and found that it is operable and when caught early they can save babies with this condition (via delivery by special c section and then remove the tumor)--I even found 4 success stories so far and have contacted those parents--these children have very little residual effects from having had the teratoma and surgeries. It's still a long road and the scariest part for my girl is that they found it so early in the pregnancy (17 weeks) which according to the research is the time they usually find it, but for the moms I've met, their child's was caught at 26-28 weeks. The scary in it being caught so early is that it can continue to grow and the concern there is that her heart may fail or the mass can grow so much that it would cause her to pass away inside. So it's still a very scary battle, BUT there is hope. I have hope again, where 2 days ago I had none. It will be baby steps taken day by day and completely trusting in and relying on God to get me thru each day and to take care of baby girl but for whatever reason, knowing what is wrong with her has given me hope again--given me something to research, pray specifically about, and fight for.
Would you all please continue to pray for her, and for her dad and I? I will keep you posted with every update as it comes. The first hurdle is the amnio results where it will hopefully rule out any chromosomal abnormality. I get those results next week. The specialist's nurse is also researching to find out who does those special deliveries and surgeries that she would need. I'm not giving up on her and I will do whatever I can to help save her--I'm continually putting her in God's hands where she is safest. I'm praying that our follow-up ultrasound will show that the teratoma has either shrunk or at least stabilized and will not continue to grow. Thank you for all thoughts and prayers!
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Re: Update on baby girl's neck mass (long)
You gain strength, courage and confidence by every experience in which you stop to look fear in the face. -Eleanor Roosevelt
After 1 year of TTC#2 BFP May 2011 m/c #3 4w2d. Off to RE.
Round 1: Femara + Ovidrel +TI = BFP! EDD 2/20/12
2IF does not always equal 3IF...Surprise!
I'm so glad you've found these success stories - what a great source of hope.
Always remember that God DOES perform micacles every day, and while there are no guarantees, there's always hope! My prayers will be with you, your husband and your little girl.
Keep us posted!