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Pacemaker?
Our son just got a permanent pacemaker put in and got a few things fixed in his heart tooo many to write. He is doing well. Just wondering if anyone has gone through this or something similar.
How long before child can return to doing tummy time?
Was your recovery period long and was thier development delayed for a long time?
Anything helps Thanks!!
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Re: Pacemaker?
my son rec'd a pacemaker/defib when he was 7 days old. it is a CRAZY long story, but we had it removed when he was 10 months old. the surgery to have it went pretty well and he recovered pretty quickly. since he was so young, he was in the ICU for about 3 weeks after the surgery. he has a syndrome where he has low-tone. he was definitely late to sit up and roll over, but it is hard to know if that is from the syndrome or the device. he got a really bad staph infection in the surgical site after the ICD was removed. it has resulted in a really nasty looking scar that has calcified and will grow with him as he grows. we joined an online support group for people with the same diagnosis. it was really helpful to hear other people describe what the device felt like and hear how other people deal with stuff like going through the airport, etc. i wish you a lot of luck. my best advice is to find a cardiologist and electrophysiologist that you trust and sees a lot of kids with the same diagnosis as your son.