My son was just diagnosed with hydrocephalus and will need to have a shunt placed. He will be having an MRI later in the week (just did an ultrasound today), and then we will establish some sort of plan. He has no signs/symptoms other than a rapid growth in head circumference. That was the only reason the pedi ordered the test. We are also meeting with pedi neurosurgeon this week.
Does anybody have a DC with this and any experience to share? I am a wreck but realize we are very lucky that it was caught so early and developmentally he is ahead for his adjusted age and showing no other signs. It is still hard not to feel a lot of sadness, anger, guilt, and tons of worry/anxiety.
I hope this was the appropriate place to post this...I am really scared and looking for some reassurance.