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Questions, PCOS and Endometriosis

snowdogssnowdogs
in Infertility

I am diagonosed stage II Endo and had 4 surgeries and I guess the only endo left is in the ovaries.

I recently had an ultrasound and was told I may have PCOS, but not sure.

I have clockwork periods, but lots of follicles.  I have other PCOS symptoms but always clockwork periods.  I dont know if I am ovulating though.

My obgyn hasnt said much of anything about how I should be tested for PCOS.  My fiance and I want to try for a baby next year after the wedding.  So I want to begin testing soon so we can know what to expect.

What should I begin to ask for?  That my insurance will cover until I can save up some money.  Do I have PCOS if I have regular periods?

What things are done to make a baby if you have both these disorders?

I am totally open to adoption, but am afraid of all the waiting and paperwork.

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Re: Questions, PCOS and Endometriosis

  • krissyh21krissyh21 member

    Many people with PCOS continue on to get pregnant, if you are in fact ovulating that is a good sign.You may need meds like metforim, you may need clomid/femera or other fert drugs to help with ovulation, but pregnancy is not out of your sights. The good thing is, that you can be proactive about it now and will be that much ahead of the game when getting ready to TTC.

    Have you considered charting to confirm ovulation? Fertilityfriend.com as well as the book Taking Charge of Your Fertility can help you know how to chart and really is a must read for anyone TTC.

    Testing done for PCOS is usually bloodwork to check hormone levels and u/s to see if you have pcos like ovaries.Unfortunatly there is not 1 conclusive test that PCOSers can turn to, rather a combination of things.

    A lot of insurances do not cover anything in relation to IF treatment, call them to see what may or may not be covered. Generally speaking, some GYNs will code issues differently in order to help with coverage, espescially during the intial stages. 

    For more info on PCOS www.soulcysters.com is a great site. 

    A lot of years and a million tears finally led me to you.
    After 7 years trying to concieve, 3 failed IUIs and 2 failed IVFs, my third IVF was a success!
    My Christmas baby turned into a turkey bird! Dillon Richard was born at 34 weeks, 5 days on November 28, 2009 after 10 weeks on bedrest for preeclampsia.
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  • ashlyroseashlyrose
    Krissyh had a great response. I will just had that since stopping bcp & of course while on them, I had clockwork periods. I would have never thought I had PCOS. Yes I have gained weight over the years but really who doesn't. We tried 6 mos on our own charting & using OPKs. Nothing. Went to the OB & that is when the u/s showed many follicles on the ovaries looking like a pearl necklace. Ran some progesterone blood work & glucose tolerance test. Progesterone was always low, meaning no ovulation & was Insulin resistance. Started Metformin to regulate sugar issues & it does help with egg quality (so i'm told). Started fertility meds like Clomid & Femara & now I'm on injectables. Woman with PCOS do get pregnant & have healthy babies but it is good to start the testing now to see where you stand so you are ready when the time comes. 
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  • meganroseleemeganroselee member

    Do I have PCOS if I have regular periods?

     Yes. PCOS is defined (as per a meeting of reproductive endocrinologists in 2003 called the Rotterdam criteria) as having two of the following;  hyperandrogenism (secondary male characteristics-- typically hair in places that females typically don't have hair, acne), few periods or complete absence of periods and polycystic ovaries on ultrasound. Meeting two of the criterion even with normal menses=PCOS

    Despite your regular periods I would recommend a FSH, LH level (the typical 2:1 ratio is typically higher in PCOS peeps) and a testosterone level (sometimes elevated in PCOS)  Also, if you have history or excessive hair and acne, this would aid in the diagnosis.  Metformin and Clomid as well as the other ART options can make conception a reality for you with these conditions.  Good Luck!

    33 yo, DH with MFI Iui x4, Dec 2009 to Jan2011 all BFN.... IVF May 2011 BFP, mc June 2011 at 6.5 weeks, FET Oct 2011 BFP! Sweet baby girl born 25 June 2012** started adoption process Feb 2010, approved Oct 2010, failed match in delivery rooms Feb & Aug 2011... Birthmom called back 3d after we returned home. Aug 26 2011, our sweet baby boy comes home for good!!
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  • jamie217jamie217

    I have endo and I do NOT have PCOS, but when stimulated with injectables my ovaries behave like I do have PCOS.  I had my 1st IVF cycle cancled in Aug because I was at risk of OHSS and now even with drastically reduced doses of stims, my current cycle will most likely because I am still making too many follicles.

     I would reccomend Femara rather than Clomid, I've heard it has been successful for many women with pcos.  I had a much better response with that than clomid and it doesn't thin your lining and has less side effects.  I didn't get pg while I was on it, but I only have 1 good tube and scarring from my endo.  At this point I am thinking of either trying IVM or the highest dose of Femara and IVF even though I won't make many eggs, its better than what I'm dealing with now.

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