Anyone have a baby with Down's Syndrome?

Kgirly · September 2009

I'm 20 weeks pregnant and was told today I have a very good chance that this baby has down's syndrome. While we're undergoing more testing, I just wanted to see if anyone is out there with a baby with down's . . . we are going to have this baby and love this baby no matter what . . . i was just hoping to hear some reassurance that we can do this, we can raise a child with down's. I'm just really scared right now.

Ms. Y. · September 2009

Hi there -- Yes, my son has Down Syndrome. We found out when we were about 18 weeks along. I know it is sooo much to take in and so many emotions. First of all you sound like a very loving mom --- I admire your courage and positive attitude about it all. You're absolutely right, you'll love your baby no matter what -- I promise!! Our son just turned one and just makes everything we do better. I won't say that every day is easy, but I can tell you that the love we have for him grows stronger and stronger each day.

I sent you a private message ------------ We'll be thinking of you!

Crista

cooker71 · September 2009

Ditto everything Ms. Y said, and I just smiled again at seeing those sig pics of your little Bean!! What a doll.

Miles has DS. We didn't know until after he was born, and it was a shock, I won't lie. We wondered how we'd be able to take care of him, what kind of life he'd have, how healthy he'd be.

Luckily, he's had no major health problems so far other than some feeding issues. And he's proving us -- and even his therapists -- wrong with his development so far. He rolled at one month and has very good tone and muscle control.

Essentially, everything we worried about, we worried about needlessly. And let me tell you, as you can see in my sig pic, when this child smiles his entire BODY lights up with happiness. It makes my heart sing.

He teaches me something new about myself, about life, about love all the time. I know the unknown is scary, you think "I can't do this," but let me tell you, you can. And you will love your child unconditionally no matter what.

Good luck to you, and keep us all updated. E-mail me if you'd like at cooker71 at hotmail.com or private message me here if you'd like to talk more.

kchoi · September 2009

my son ryan has Down syndrome. he is 26 months now and i just love him more and more each day. it is def. a challenge in the beginning as you try to soak in soooo much information, but it gets so much easier as time passes. our days are definitely busy with 4-5 different therapies a week (along with other things like mygym and music class), but i wouldn't change a thing. i think it's great you will be having the baby no matter what. something that has helped me was to always keep in mind "why NOT me" instead of "why me". these little guys are great and can accomplish so much more than once thought-driving cars, going to college, etc.. hang in there and if you do find out that your child has Down syndrome, i'd highly recommend you seek out parent support groups. i think seeing little kids with Ds will put your mind as ease!

soontobeahigh · September 2009

My daughter has Ds. We found out around 17 weeks via amnio. I remember feeling exactly like you are right now. There is a great group over on babycenter.com for Ds pregnancy and the ladies on the Ds board are great too. I would recommend you pick up the book Gifts. Its a great read and even if your LO doesn't have Ds, you will see the joy our kids bring to our lives.

Good luck and keep us updated. We are here if you have questions or just need to talk.

cooker71 · September 2009

soontobeahigh:
My daughter has Ds. We found out around 17 weeks via amnio. I remember feeling exactly like you are right now. There is a great group over on babycenter.com for Ds pregnancy and the ladies on the Ds board are great too. I would recommend you pick up the book Gifts. Its a great read and even if your LO doesn't have Ds, you will see the joy our kids bring to our lives.
Good luck and keep us updated. We are here if you have questions or just need to talk.

Yes! Ditto on the "Gifts" book. I just got done reading it, and feel so uplifted and positive about Miles' future.

ala_1220 · September 2009

I do not have a child with Down Syndrome, but my best friend's daughter does and I also work with children with special needs. I wanted to pass this website along to you and others. https://www.fathersjoy.org/ It is an organization started by my best friend for support and information (free DVD and brochures) on DS and other disabilities. The reason the organization was started was because they didn't know my "niece" had DS until she was born. The information that was provided to them was mostly negative...and most of the information was not true!!! Abby is now in 3rd grade in regular classes, reading, writing, and is the greatest kid ever!!!

I wish you the best of luck. God bless you all. It is a hard job, but will receive double the blessings from your children.

pennyandandy · September 2009

Can I just say, as I special education teacher, that it makes my heart warm and fuzzy to read these posts from moms that love their children so much...I don't even have words. I often believe that special mothers are chosen for these children.

One of my favorite students that I have ever worked with has DS. She lights up my day. She calls me her 'bff' and we sing Hannah Montana songs together. She can read, she can write, she has a ton of friends her own age and just last year (in 2nd grade) she experienced her first over night at a friend's house. Please don't think that DS will limit your child in any way. It just means you may have to take different avenues to get places. It means having different goals. And being more loved by your little one then you ever thought you could be Big Smile

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